Posted: October 8, 2014 in Uncategorized

 Join us for the 3rd Annual Boo Bash!  

Featuring:

*  Haunted Casino Night with prizes

 

*  Saltgrass Catered Dinner

 

*  Music entertainment by Smokestack Sons and Johnny Bravo Entertainment

 

*  Halloween Costume Contest with prizes

 

*Silent & Live Auction

 

Saturday, October 25, 2014

6:00 pm – 10:00 pm

Mason Creek Community Center
20201 Kingsland Blvd.

The Boo Bash will be a night full of entertainment for adults and our hidden families to help raise necessary funds for us to serve in 2015 with our programs – especially the Hope Kit care packages sent across the states to homebound and hospitalized chronically ill teens and the much anticipated Anti-PROM locally a specially planned prom for our youth who would not normally get to participate in a prom due to their health.

Tickets are $50 and include dinner, entertainment, and three door prize drawing tickets. Some generous sponsors have donated towards Hidden Families tickets to help offset their costs.  Please message us directly for more information atinfo@mikshiddenhearts.org.

Register at mikshiddenhearts.org. 

Sorry, only guests registered by Monday, Oct. 20 will be admitted.


We still need donations & sponsors!

Can you help us make a difference in the lives of chronically ill teens?

Kindly consider donating a silent auction basket or gift item to help us reach our fundraising goals.  Or, consider being a sponsor.  Information and sponsor benefits are below.

 
To donate, please email us so we can coordinate pickup of your donation atinfo@mikshiddenhearts.org or make a financial donation online here.  
 
Want to be a sponsor?  Please click here.  

Thank you to our Sponsors!

Gold Heart Sponsors

Ronda McWhorter & The McWhorter Family

Saltgrass Restaurant (Katy Location)

Silver Heart Sponsors

Brett Perroux Photography  –  Lowrie/Moller Family  –  The Marlowe Family

Commissioner Andy Meyers  –  Joy’s Biscotti  –  Joy & Alicia Lee

Bronze Heart Sponsors

The Rivers Family  –  Chris & Amy Jinks – Anonymous Donors

Mik’s Hidden Hearts Alliance | | info@mikshiddenhearts.org |http://www.mikshiddenhearts.org

From the Momma Bear:  I love hearing the Pay It Forward stories at places like Starbucks and Chick-fil-a.  People spreading kindness without expecting anything in return.  Just simply doing something to bring joy to another person’s day. This, my friends, is what we should all strive to do each and everyday.  Big and small acts of kindness purely done to be uplifting to others.  Which brings me to this post for today….

Friday Night Lights and Pay it Forward?!:  I just had to share the story that happened to Tami, one of my sweet friend’s, son named Spencer who just happens to have Autism.  Spencer is an amazing kiddo and is one of the two big blessings to Tami and her husband Mike.

Their other blessing is Spencer’s big brother, Parker, who plays football for the Katy High School varsity team (in case you do not know, football is a big deal here in Texas!)  Mike, Tami and Spencer go to Parker’s games to cheer him on and what could be an event that spotlights Spencer’s autistic difficulties turns into an amazing display of true human kindness.

Check out the video below of Katy High School Band drummer letting Spencer play with the band.  This has not happened one time, but several times.  The drummers include Spencer and it means the world to him and to his parents.

Sept 26 - Spencer's Mom, Tami, wrote "Fun night for little bubbie!! Thanks @maxholtke and Katy drumline for letting him jam with y'all!!"

Sept 26 – Spencer’s Mom, Tami, wrote “Fun night for little bubbie!! Thanks @maxholtke and Katy drumline for letting him jam with y’all!!”

One of Tami’s friends wrote “Max watches for Spencer and the other percussion kids all greet Spencer as he comes in. They want him to play! At one point the cadence wasn’t fast like Spencer likes to play so Jordan changed cadences. This is s story about drummers and their passion for drumming!”

Click here if the video is not showing below:  http://youtu.be/3ecpMdrhMnc

Because we at Mik’s Hidden Hearts Alliance greatly believe in promoting all of those who live with hidden illnesses, we also like to focus on those young people who are often “invisible” to the general population due to disabilities or disorders.  We also like to encourage our hidden youth to not just look at being served, but how to “Bless Up” and serve others.  When a “normie” teen reaches to the hidden, it makes my heart sing even more.  Thank you Katy High School Band and Spencer for being another example of goodness in our community!

And don’t forget!  Mik’s Hidden Hearts Alliance 3rd Annual Boo Bash Charity Casino Night will be held on October 25.  We are raising money to help further our mission to reach out to homebound and hospitalized youth both locally and nationally with our programs such as Hope Kits Care Packages and our very popular Anti-PROM to be held in Spring 2015 in Houston at the wonderful Maggianos.

Please consider helping us towards our fundraising goals AND attend the Bash!  To learn more, go to www.MiksHiddenHearts.org.  

Join us for the 3rd Annual Mik's Hidden Alliance Boo Bash!

Join us for the 3rd Annual Mik’s Hidden Alliance Boo Bash!

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Mik Homecoming 2010 – Freshman year in High School – Hours before our life changed forever

From the Momma Bear: October is a fun month of fall festivities and homecoming football games. I was just like many of my sweet momma friends 4 years ago coordinating my daughter’s Homecoming pictures, Homecoming mum (it’s a Texas thing!), her homecoming dress, etc. My daughter always had big goals and dreams and she started out her freshman year ready to take charge and make them happen – determined to go have fun in high school while focusing on making good grades so she could go away to college after graduation.

This October 23rd marks the 4th year anniversary when my daughter first collapsed on the dance floor at homecoming dance. Oct 23… the day my daughter’s entire “planned” future was taken away from her (or so we thought then). Her entire high school experience – gone in one night. When something we all take for granted, a working autonomic nervous system, decided to work against her pitting her body against the will of her spirit.56813_1697051351358_2025625_o

We decided to host our first Mik’s Hidden Hearts Alliance Boo Bash in 2012 to turn a very negative date in our world to a positive date (Boo Bash!) in order to raise money to spotlight the needs of the hidden teens, young adults and their families that we serve. October 23rd is also Texas Dysautonomia Awareness Day in honor of Mikaela Aschoff.

Please make plans to attend Boo Bash and help us continue our mission! It is a blast! If you can’t attend, please consider making a donation, sponsoring or purchasing raffle tickets. Go to our website for more information: www.mikshiddenhearts.org

Thank you for helping to make my daughter’s dream and vision of creating Mik’s Hidden Hearts Alliance for Dysautonomia Teens come true and giving the families we serve a voice and help them to remember they are not alone. Oct 23rd is now a positive day in our eyes. It is the date we had our eyes open to a world we did not realize unfortunately existed before we were exposed to it…. that of thousands of young people across the country who are suffering from debilitating chronic illness and their families who are in need and live this life on a regular basis. They are the unsung heroes – some of the strongest people you will ever meet – who live a mostly invisible life and deserve their time in the spotlight.

Calling all Hidden chronically ill youth and their caregivers – we want to hear from YOU. (We would love have the patient perspective, caregiver perspective or both!)

Send us your video clips and pictures and let us know what Mik’s Hidden Hearts Alliance has meant to you. Also, we would like to hear how the hidden illness you face affects you.

Video clips and photos will be used in our upcoming Awareness Campaign that will be premiered at Boo Bash

Please have submissions in by Oct 1.

Send to: info@mikshiddenhearts.org

20140218-115755.jpgJoin us as we welcome some of our out of town families who will be in Houston!  

This event is for teens/young adults and their caregivers with dysautonomia and other life-changing hidden chronic illnesses.  

When & Where:  Tuesday September 9, 2014 6:30 PM – 8:00 PM
Memorial Hermann-Texas Medical Center 6411 Fannin St Houston, TX 77030

In the hospital location:  Memorial Hermann Hospital Cafeteria

1st floor, Robertson Pavilion

(*Feel free to go get your dinner first, then join us at the table)

 **Update:  Heads Up! We just found out the regular Hermann Cafe is under construction. So they moved it temporarily to a makeshift cafeteria in Memorial Hermann basement, Hermann pavillion, As long as they have tables we can sit at, we do not mind being in the basement : )

RSVP Please so we can make sure to save you a spot!  RSVP at:  info@mikshiddenhearts.org

And don’t forget to ORDER TODAY to gift yourself with our “Fall to Fly” shirt, then because of your order, we will send one to a Hidden Teen Hope Kit recipient AND donate 20% to our good friends at Lamb Foundation for Dysautonomia Research.  Orders accepted through Sept 15!  Place your order here!

Fall to Fly Sept 2014 Promotion

 


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement and hope to homebound and hospitalized teens and young adults who suffer from Dysautonomia and other life-changing chronic illnesses through social outreach, Hope Kits, Hospital Teen Program and Dysautonomia Awareness.  #dysautonomia #chronicillness #Hope4DysTeens #TheHidden Dysautonomia Teens

To order your MHHA “Fall to Fly” Shirt, click here.
Fall to Fly Sept 2014 Promotion

1907418_10154577838080227_5743302117458273462_nMessage from the Momma Bear:  In light of the sad passing of one of my favorite actors, Robin Williams, I felt compelled to write this post facing many who struggle with invisible battles.

Many of you know I get on my soapbox to highlight the struggles and needs of the overlooked thousands of teens and young adults who live with debilitating chronic illness. People – you and me – tend to get so busy we forget about them and their overworked and over stressed parents/caregivers.

Can you please take a moment today to send a quick encouraging message to one of your chronically ill friends or another group of people whose struggle is near and dear to my heart: one of your friends you know struggling with mental issues?

Next step:  Brainstorm ways you can serve them (the patient and their family) in big and small ways.  Something as simple as a pizza gift card can help take care of their dinner AND ease their financial stress when medical bills are never ending.  Most importantly, it helps them to remember they are not forgotten…. that they matter.

You will never truly understandBack to my soapbox:  I love the dedication of the medical teams who REALLY understands invisible illnesses and works diligently to not only ease the symptoms, but search for a cure.   This soapbox is NOT for those dedicated medical team members.  However, I REALLY get on my soapbox when some in the medical community seem to feel better when modern science can not explain a physical chronic illness so they tell these kids it’s all “in their head”. I have heard this told to countless patients we met through Mik’s charity, Mik’s Hidden Hearts Alliance, all over the country.

(1). Majority of them did not start their illness journey depressed. Living years in pain and isolation CAN cause feelings of depression. However some doctors just want to focus on the depression, claiming the physical symptoms the patients are facing are due to their “sad” feelings, refer them to a psychiatrist without trying to cure the illness or do not believe the physical symptoms are caused by a chronic illness that in many cases, still in its infancy in research.

2. No matter what, mental disorders are REAL. Those who suffer from it are similar to our chronically ill teens in that both groups fight an invisible battle everyday. Just because you can’t see it does not mean it is not real.

3. Do I believe all our chronically ill teens should be diagnosed as depressed? No – because this may not be the case (everyone gets the blues now and then) and this is like a pat on the head non-serious answer that tends to trivialize their physical symptoms AND it lessens the importance of those suffering true long term depression battles.

Both chronically ill patients and those patients suffering from a mental illness needs our understanding, compassion and hope. Treat your immediate world a little nicer. Practice patience in our rush get out of my way society. Reach out to them on a regular basis to let them know they are not forgotten.

Because you will never know how far your one smile or your one kind word can make someone’s day a little better. Spreading kindness and understanding gives life to hope. Hope encourages all to keep on trying.

And please remember – there is NO shame in asking for help when you or a loved one realizes the “blues” is much bigger than a temporary down time.  Get professional help.  If we were more transparent with one another, we would realize many people we think have it “all together” are really struggling with their own invisible battle.  Regardless what your personal battle looks like, we are all in this together.  Love thy neighbor and let’s work on making our world a little more compassionate and understanding.  End of Soap Box : )

Hope graphic copy


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement and hope to homebound and hospitalized teens and young adults who suffer from Dysautonomia and other life-changing chronic illnesses through social outreach, Hope Kits, Hospital Teen Program and Dysautonomia Awareness.  #dysautonomia #chronicillness #Hope4DysTeens #TheHidden Dysautonomia Teens

Please help spread awareness!  Like our Facebook and Twitter pages.

 Learn how you can help MHHA here.