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Today, Mik and I attended the Dysautonomia Seminar hosted by the Dysautonomia Center of Excellence / UT Physicians / Children’s Memorial Hospital.  The entire seminar was wonderful and very interesting to this Dysautonomia mom research nerd.

The fabulous Dr. Numan and Dr. Butler spoke along with guest speaker (awesome!) Dr. Chelimisky. Big props go to the best Dysautonomia Research nurse, Rebecca Martinez, for all her hard work in coordinating the seminar!

I was so blessed to talk to so many of our MHHA families at today’s Dysautonomia Seminar in Houston (reached max capacity of 300!)

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As I looked across the room, I saw parents of all ages, living in different areas, different cultural backgrounds with the SAME unconditional loving determination to understand their teen/young adult’s Dysautonomia life AND get them the help they need.

We are all family by fire.

#Dysautonomia. http://www.MiksHiddenHearts.org

Big thank you to Lamb Foundation and Dysautonomia International for co-sponsoring this event!

Mik’s Hidden Hearts Alliance serving teens and young adults with #Dysautonomia and other life-changing chronic illnesses.

full-capacity-webAnti-PROM registration is closed as we are at full capacity.  Can not wait to see everyone who registered there!

Have donations?  We still need more prize baskets to be given to all our chronically-ill youth in attendance.  Please message us to coordinate the pickup of your donation:  info@mikshiddenhearts.org

 

 

Calling ALL registered Anti-PROM ladies (the hidden – chronically ill youth, their guest and our volunteers!) Come join us THIS Saturday for our annual Dress Shopping Day sponsored by Pruning Hooks Ministry.

Prom dress shopping day is THIS SATURDAY for all of our REGISTERED Anti-PROM ladies and their guests.

Please note you must be registered to attend our Anti-PROM via online www.MiksHiddenHearts.org to get your free dress.  Anti-PROM is for teens and young adults with Dysautonomia and other life-changing chronic illnesses.

When: Saturday, March 19

Time: 2:00 – 5:00

Where: St. Peter’s United Methodist Church 20775 Kingsland Blvd, Katy, TX 77450 (In Asbury Hall)

Big thank you to St. Peter’s for donating their space, Cherri Northcutt for coordinating the room and Pruning Hooks Ministry for their annual prom dress drive benefiting our organization.

 

#Dysautonomia #ChronicIllness #Prom  Mik’s Hidden Hearts Alliance

MHHA Prom Flyer 2016

wp-1456271913240.jpgAnti-PROM Update – Loving the excitement for all of you coming to Anti-PROM. We have handed out most of our tickets. DON’T MISS OUT!! We only have 3 more tables available. If you OR YOUR GUEST (if you are bringing one) have not registered yet, please do so asap. Don’t wait for closer to the date to try to register as they will be gone by then.
 
**Many of you said you plan on bringing a guest, but your guest has not registered yet. Please do so asap so you do not miss your chance to bring your friend.
Register online at:  www.MiksHiddenHearts.org
(Read Press Release Below)
#Dysautonomia  #ChronicIllness
Mik’s Hidden Hearts Alliance
MHHA Prom Flyer 2016

Press Release:

Anti-PROM for Houston area Chronically Ill Youth – Registration Now Open! 

When:  Sunday, April 24, 2016

Where:  Maggiano’s Little Italy (in the Ballroom) 2019 Post Oak Blvd.  Houston, Tx  77056

 

Mik’s Hidden Hearts Alliance (MHHA), a 501c3 nonprofit charity, founded by 19 year old Katy resident Mikaela Aschoff, will be holding their 4th Annual Anti-PROM for Chronically Ill high school aged teens on Sunday, April 24, 2016 from 6:00pm to 9:00pm.   The event, will be held at the Maggiano’s Little Italy in their Ballroom in Houston, Texas.

 

Who is eligible to attend?  Any teen or young adult who has Dysautonomia and other life-changing chronic illnesses.  Each hidden (chronically-ill) guest is allowed to bring one friend (teen or young adult) as their guest.

 

Special night to include:   Dinner, casino games, music by Johnny Bravo Entertainment and fantastic prizes for each of our hidden (chronically-ill) guests. Attire:  Dress is semi-formal.

 

Complimentary Tickets require online RSVP by April 15.   Tickets are first come, first serve.  Sorry, NO tickets at the door will be available. To reserve your tickets, visit www.mikshiddenhearts.org.

 

Donations are greatly appreciated!  If you would like to contribute financially to the Anti-Prom, donate 100 of your business product for our Welcome Swag Bags or donate game prize baskets for our guests, please contact Mikaela Aschoff at info@Mikshiddenhearts.org.

 

Why is it called Anti-PROM?  MHHA Anti-PROM is the opposite of a “traditional school prom” because it is specially planned and tailored for the health and physical abilities of our guests who are all Prom Kings and Queens in our book!  Our Anti-PROM is uniquely planned which includes no strobe lights and no dancing due to their physical/health limitations, but does include fun deejay music, dinner and sit down casino games in which everyone is included and has lifetime of memory making FUN!

 

 

What is a “Hidden Illness”?  Like Dysautonomia in which MHHA Founder Mik Aschoff has, a hidden illness is one in which the patient looks “normal” on the outside, but their serious illness and debilitating unpredictable symptoms are hidden to the casual observer.  Not all life-changing debilitating illnesses are visible and it is our hope at MHHA to give a voice to those we serve who feel mostly hidden in society, their unseen pain often disregarded and unfortunately sometimes forgotten by their friends due to their frequent hospitalizations and school absences.

 

Thank You!  This event would not be possible without our many generous volunteers and donors who give throughout the year, especially at our annual Boo Bash, which helps make Anti-PROM free to our guests.  They have our most heartfelt appreciation!

 

MHHA is proud partners with Lamb Foundation for Dysautonomia Research and appreciate the dedication of Dr. Numan, Dr. Butler, Rebecca Martinez (Dysautonomia Research Nurse) and the rest of the amazing team at the Dysautonomia Center for Excellence at UT Physicians / Children’s Memorial Hermann Hospital in Houston, Tx.

MHHA Prom Flyer 2016

Image  —  Posted: March 1, 2016 in Uncategorized

Update: Yikes! Our Website is Down

Posted: February 27, 2016 in Uncategorized

We have just been notified our website is down.  We are working with our web host to fix this asap.  Until that time, if you have any questions about Anti-PROM or general MHHA questions, please contact Mik’s mom, Keri Aschoff, at her personal email account:  kerionco@entouch.net.

Thank you for your understanding!

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Hospitalizations, doctor appoinments and health limitations. It is no surprise many Chronically ill youth are unable to attend their much anticipated prom. At Mik’s Hidden Hearts Alliance, we believe not only chronically ill youth should not miss prom, but they should all be treated like VIPS!!!

So join us at our 4th annual Anti-PROM 2016! Registration is NOW OPEN online at http://www.MiksHiddenHearts.org.

Any young person with a life changing chronic illness (age 13 years and up) and our Anti-PROM young adults alumnae are welcome to attend!
Tickets are FREE but first come first serve. We will reach capacity before Anti-PROM so get your ticket reserved today.

**All Anti-PROM chronically ill guests may bring one friend with them if they so choose. (Guest will need to register too. Guest does not have to have a chronic illness)

Prizes for every hidden guest attendee!!