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Join us for fun and friendship this Saturday in Cypress, Tx for Family Dinner Night!

RSVP so we can save you a seat and for location information to: Info@MiksHiddenHearts.org. 

  This social is open to our hidden teens & young adults and their families.

(Family social nights are pay your own way.)

wickedGet your order in by this Friday!! Finally! Wicked information is here! Please read CLOSELY for the ticket limits. Invoices will be sent at the end of the week.

Unfortunately, our contact, the corporate & group sales manager at the Hobby Center who lobbied strongly on our behalf was not able to finalize the original deal he thought he could get us (though he said other musicals it is definitely possible) Though we still have a great deal!

***There are ticket limits for the MHHA special pricing discounted tickets. There are no limits on the other slightly discounted tickets and those are open to anyone.

PLEASE NOTE IT IS A NEW DATE – Sunday July 31 at 7:30pm
**$$$ is not due at this time

Location:  Hobby Center in Houston, Tx

RSVP through this link!
https://www.eventbrite.com/e/mhha-social-wicked-tickets-26124397777

Mik’s Hidden Hearts Alliance serving homebound and frequently hospitalized teens and young adults with #Dysautonomia and other life-changing #ChronicIllnesses

www.MiksHiddenHearts.org

 

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Mik’s fiancee Nick literally carrying her when her legs refused to work any longer.  #TrueLoveDespiteDysautonomia

(Originally Posted by ESD 48 News) Have you ever noticed that people with giving hearts tend to find each other.

One of our volunteer firefighters, Nick Bourdoumis, has found that match in Mikaela Aschoff. Mikaela, better known as Mik, has spent much of her young life helping others in spite of her own debilitating condition.  Nick and Mik recently got engaged and their greatest wish is to be able to get through her diagnosis together and live a normal life as man and wife.

“Mik’s hope is that she could walk down the aisle on her own and stand by herself at her wedding,” says her mother Keri.

…To read the rest of this ESD 48 News report on Mik, click here.

 

Click here for the Channel 2 #KPRC news interview by Keith Garvin on Mik’s story.

#Dysautonomia #StemCells #Celltex

13217250_10107580857622430_5653130320284486507_oWe are so excited to have this year’s Anti-PROM video for you to enjoy!  Rob Cross did an AMAZING job capturing the fun and very heart of what we do.  We can never express how much this means to us!

Anti-PROM is not like any other “prom” you have ever seen!  It is a specially planned prom for our homebound and frequently hospitalized teens and young adults with Dysautonomia and other life-changing chronic illnesses.

Because of the majority of health limitations, we do not have dance, but we do have fun casino games, the best dj (Johnny Bravo Entertainment), swag bags filled with gift items AND fantastic prizes for each of our hidden (chronically-ill) guests.13217019_10107580738755640_3225892970975990632_o

Check out this Anti-PROM video!  Click Here

Hope to see YOU at our next one!

*Remember to follow us on Facebook for the latest MHHA news and events.

 

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Mik’s Hidden Hearts Alliance serving teens and young adults with #Dysautonomia and other life-changing #ChronicIllness.

http://www.MiksHiddenHearts.org

 

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My daughter and Mik’s Hidden Hearts Alliance founder on #NBC #KPRC Channel 2 news, interviewed by Keith Garvin about her #Dysautonomia story and future therapy with #Celltex.

Please watch and share!

http://www.click2houston.com/news/fort-bend-county-woman-looks-to-community-she-often-helped-for-help

#Dysautonomia. #ChronicIllness #Stemcells

20140301-111316.jpgWords from Mik this evening reflecting not just on the scary episode and subsequent ER trip today (she’s going to be okay, but has another concussion and cervical sprain), but life with dysautonomia, too:

Dysautonomia is a pain – I call it a curse. Though patients get used to it, it never gets any easier.

If you think fainting (which is just one of many problems this illness can bring) is no big deal then I got news for you. The actual act of fainting doesn’t harm you – it’s what happens afterwards.

It can be extremely dangerous depending on where you are and what you hit. I once had a “friend” tell me along the lines of “Whats the big deal? You just pass out.” She didn’t realize it, but that devastated me. I thought she understood me to an extent. To have someone write off a huge struggle you have to deal with as if it’s nothing really bites.

0430160814a.jpgThis is just part of what makes me so passionate about others like me and the Hidden Hearts Alliance. I hope that with the awareness we bring people will become educated and those who once didn’t understand will approach the way they see chronic illnesses differently. And I work to have those who do suffer with these chronic illnesses have a safe haven to go to where there’s others like them who understand and they’re not alone.

So I thank all of you who have supported the charity and to those of you who have been great friends, supporters, and caregivers to someone who is a hidden heart. Y’all are absolutely amazing.

#Dysautonomia #Hope4TheHidden

http://www.MiksHiddenHearts.org

Serving teens and young adults who have #Dysautonomia and other life-changing #ChronicIllnesses

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It is time… NO MORE dysautonomia causing hard falls like she did today.  NO MORE.  I can not bear to think one day she could not wake up from one of those fainting episodes that cause one too many concussions.

Please help share this link
https://www.gofundme.com/25knwyzw
so we can try to get Mikaela Aschoff the treatment she greatly needs that insurance does not cover. 

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So many of you have so generously helped with our other actual charity goals and because this personally and directly affects Mikaela (not the charity) we do not want to bother you for more.  But if each one of my friends could share this link, with writing a personal message, you could easily generate countless dollars to make this happen.

****If you have a business that you would like to donate a percentage of your sales OR a fundraiser idea that you can lead, PLEASE contact me.  The sooner we make this happen the better.

Thank you my friends, for helping and sharing.  Isaiah 40:31

#TeamMiracleForMikaela  #Dysautonomia  #MiksHiddenHearts