Sidenote: (**Why in the world would I let a photo like this of me be published? Besides my cute puppy, I feel it is important for people to understand that I have my good days and not so good days. I don’t always “look” sick or exhausted, but I sure do feel it – like you can tell in this picture. Most days when you see me in public, that means it is a good day. Makeup application and artistry is my therapy and when I am out in public my makeup and vintage fashion is on! – if I can make myself look “human”, it helps me to feel better Somedays, though, I can’t do much more than lay in bed. In my blog, I want you to see the good days, the not so good days and, as my Mom calls it, my days where I look like I partied like a Rock Star… though in reality I might have been able to just walk across my room..)
Written Monday, June 25, 2012: After a long, fun relaxing week visiting family, (and getting spoiled by my grandparents), I am starting to plummet down the rollercoaster again today.
So far, today has brought me: terrible migraines, chest pain, difficulty staying on my feet, flared up Fibromyalgia (killer all over nerve pain), and of course, the low blood pressure. It’s to be expected, but still frustrating at the same time. Just when I think I have the hang of this illness after suffering from it over a year and a half, a day like today happens along and reminds me how much I do not care to be on this rollercoaster ride.
But hey, all I can do is sing Hakuna Matata and make the best of it…so I snuggled with my puppy chihuahua, Alice, and had a movie marathon.
On a positive side note, I will be delivering a requested Hope Kit tomorrow to a very seriously ill teen. It makes me incredibly happy to give out Hope Kits and to see people’s reactions when they receive them…knowing that I was able to put a smile on their face. So that is my reason to smile this week, even if I’m going through another crazy rollercoaster ride.
My Song for the Day: To know me is to know I LOVE MUSIC! My MP3 player and my favorite artists have helped me get through the tough days more than I can express. I will post my favorite songs from time to time and hope you enjoy them too! Today’s song is pretty simple, yet exactly how I feel:
This song always makes me smile and the lyrics below really capture what I feel:
Today I don’t feel like doing anything
I just wanna lay in my bed
Don’t feel like picking up my phone
So leave a message at the tone
‘Cause today I swear I’m not doing anything.
On a serious, heartfelt note: My fellow chronically-ill teens – always remember you really are not HIDDEN. There is Hope. And you have many caring hearts, including mine, who will continue to have you in our thoughts, prayers and actions.
*Know of a teen either hospitalized or homebound that could use hope in dealing with their hidden life-changing chronic illness? Please contact us for a Hope Kit at firstname.lastname@example.org. We can ship nationwide.