Boo Bash Update & How to Be a part of our Dysautonomia Awareness Initiative

Posted: October 4, 2012 in Uncategorized

Parents & Teens with Dysautonomia – To help with our community outreach initiative, we would love to hear from you!  On a video clip, let us know what your daily life is like (or for parents:  how you feel watching your teen struggle) and what it would mean to you to have more understanding and awareness for Dysautonomia.  

Please send video or link to:

And don’t forget to get your rsvps in for Boo Bash!  Dysautonomia and other hidden chronically ill teens are our guests and families/friends can register at  (Teens:  to register your attendance, please send your name and contact info to

Money raised will go directly to providing Hope Kits (awesome teen gift baskets) to Dysautonomia teens all around the country.  Plus it will help fund our continued community awareness campaigns and more social outreach program to families and teens with Dysautonomia and other hidden chronic life-changing illnesses.



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