A must listen to anthem – Today’s Dys Song of the Day – Her Diamonds by Rob Thomas

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Me and Mik on her 14th birthday 2010. (a few months before she first became ill)  I miss the simplicity of “normal” days that I did not recognize as a quiet blessing & miracle back then.

(From the Momma Bear)  We have not had a “Dys Song” in awhile and the one selected today is a must listen to for both the teen patient and their caregiver.  Today’s song is “Her Diamonds” by Rob Thomas.

I personally can relate to this song’s lyrics because some days…I just can not take it anymore – seeing my beautiful kindhearted self-motivated determined daughter struggling with an inner desire that wants to FLY but a body that often times will not cooperate.

Though Mik has learned to push through the difficult days and rarely allows her tears to fall anymore, I can see her pain and discomfort every…single…day.

And this momma’s tolerance, (which is usually long-lasting, enduring optimistic filled “we can conquer all” attitude) to bear it can get diminished in the blink of an eye.  

She should be out hanging with friends full of teenage energy, enjoying Senior-itis and not having to be concerned with how to balance the few hours each week of semi-energy and brain clarity so she can get “more” out of life.

I know my fellow caregivers and helpers can understand what I mean.

  • Yes, I believe faith is strengthen in times of trial (not bliss) and God will get us through the good and not so good days.
  • Yes, I believe we should make the most out of any situation life brings us.
  • Yes, we strive to teach our kids (and they teach us!) how to persevere with grace despite the obstacles in our path.

It’s just on some of “those days”, we have had enough and just wished for a moment in time we could bless our teen with a day of NORMAL.  What normal day would you want for your teen if you could grant it?

Many in the autoimmune community for years have referred to “Her Diamonds” as their go-to anthem.  Though this song has made the rounds, it deserves to be repeated – especially those new to the “chronic illness” world.

According to his website bio, at RobThomasMusic.com, Rob wrote this song about his wife, Marisol, who suffers from an auto-immune disease.

“Her Diamonds,” is the most personal song Thomas has yet committed to disc. Rob’s wife Marisol is courageously battling an autoimmune disease, and “Her Diamonds” was written “about a couple dealing with that on a day-to-day basis,” explains Thomas. “There’s an incredible amount of sadness that comes with something like that.”

Sometimes you have to fall... before you can fly

Sometimes you have to fall… before you can fly

Love the beauty of this song and the heartfelt lyrics.  And the video reminds me there is always tomorrow to start anew….and I always prefer to try a new day with a can-do attitude.

Because let’s face it, there is a good chance today is not the day for finding my magic wand to magically cure all of our chronically-ill teens.  So we can choose to rise above it all, give our teens our care, love, support and most importantly HUMOR to see the good in each day.  

(And sidenote, let’s just pray there are no hidden cameras in the hospitals… Mik tries to pretend she does not like my tapdancing Broadway show to all the alarm beepings  when she is feeling down in the hospital!  Ha!  But I know she secretly likes it… right Mik?  Uh…Mik?)

 

Check out the video below and let me know your thoughts!  Also, make sure to check out the amazing non-profit organization Marisol and Rob Thomas founded called Sidewalk Angels Foundation.  Love Marisol’s perseverance, their charity’s mission and the great work they have done.

 

 

 Her Diamonds Lyrics

Oh what the hell she says
I just can’t win for losing
And she lays back down
Man there’s so many times
I don’t know what I’m doin’
Like I don’t know now
By the light of the moon
She rubs her eyes
Says it’s funny how the night
Can make you blind
I can just imagine
And I don’t know what I’m supposed to do
But if she feels bad then I do too
So I let her be
And she says oooh
I can’t take no more
Her tears like diamonds on the floor
And her diamonds bring me down
Cuz I can’t help her now
She’s down in it
She tried her best and now she can’t win it’s
Hard to see them on the ground
Her diamonds falling down
She sits down and stares into the distance
And it takes all night
And I know I could break her concentration
But it don’t feel right
By the light of the moon
She rubs her eyes
Sits down on the bed and starts to cry
And there’s something less about her
And I don’t know what I’m supposed to do
So I sit down and I cry too
And don’t let her see
And she says oooh
I can’t take no more
Her tears like diamonds on the floor
And her diamonds bring me down
Cuz I can’t help her now
She’s down in it
She tried her best and now she can’t win it’s
Hard to see them on the ground
Her diamonds falling down
She shuts out the night
Tries to close her eyes
If she can find daylight
She’ll be all right
She’ll be all right
Just not tonightAnd she says oooh
I can’t take no more
Her tears like diamonds on the floor
And her diamonds bring me down
Cuz I can’t help her now

She’s down in it
She tried her best and now she can’t win it’s
Hard to see them on the ground
Her diamonds falling down

Songwriters: Thomas, Robert Kelly

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses through social outreach, Hope Kits, Hospital Teen Program and Dysautonomia Awareness.  #dysautonomia #chronicillness #Hope4DysTeens #TheHidden

Please help spread awareness!  Like our Facebook and Twitter pages.

 Learn how you can help MHHA here.

We appreciate all of our angelic sponsors.  With every big or small donation, we are able to help more Hidden Teens.  Special thank you to our Gold Heart Sponsors at Lamb Foundation for Dysautonomia Research, Spero Rehab and J Knesek & Assoc.

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