Archive for the ‘Dysautonomia’ Category

boo-bash-flyer-2016We would like to express our appreciation to our current 2016 Boo Bash Sponsors and their dedication to help teens and young adults with Dysautonomia and other life-changing chronic illnesses.

Come join our sponsors and us at the BOO BASH!  Get your tickets before they sale out.  Click here for more information.  

GOLDHEART

JKnesek & Associates

Pro Script America Pharmacy

Verusco, LLC

SILVERHEART

Celltex

Pink Posh Ninja w/ Perfectly Posh

West Point Lincoln

Andy Meyers – Fort Bend County Commissioner Pct 3

BRONZEHEART

Lamb Foundation

Messock Law Firm

Solid Surfaces

Lee Family

Mik’s Hidden Hearts Alliance serving teens and young adults with #Dysautonomia and other life-changing chronic illnesses through Hope Kit care package program across the United States and socials in the Houston area.

www.MiksHiddenHearts.org

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boo-bash-flyer-2016FOR IMMEDIATE RELEASE
 
MEDIA CONTACT:
Lisa Marlowe
Boo Bash 2016 Chair
713-955-8MIK
 
 
Tickets on Sale Now for 5th Annual Charity Boo Bash
 
                                Date:  Saturday, October 29, 2016
                                Time:  6:00 pm – 10:00 pm
                                Place:  Constellation Field – Insperity Club, 1 Stadium Drive, Sugarland
 
HOUSTON, TX (August 22, 2016) –  Don’t miss the best time you’ll have in a costume.  The 5th Annual Charity Boo Bash promises to be a Halloween soiree like no other.  Tickets for the Boo Bash are on sale now at www.MiksHiddenHearts.org.  Admission is $55 and includes dinner, a welcome bag of goodies, and a spooky good time.  Sponsorships for the event are also available.
 
The party will feature a delicious gourmet dinner with dessert, drinks, casino games, prizes, a photo booth, costume contests and DJ Johnny Bravo.  Boo Bash 2016 will be held at Constellation Field, home of the Sugar Land Skeeters, in the Insperity Club, a unique party space behind home plate on the deluxe skybox level.  All proceeds benefit Mik’s Hidden Hearts Alliance (MHHA), a charity for teens and young adults with Dysautonomia and other debilitating illnesses. 12175973_10106804673107420_770890860_o
 
The Boo Bash provides ample opportunities for party-goers to win prizes, both big and small.  There will be silent and live auctions with a variety of items including a Destin Florida Condo get-away and round-trip airfare for two to any location in the continental US.  Raffle tickets will be available with prizes of date-nights for a year, a year of gourmet coffee or a family movie-night out.  Costume contests offer cash prizes for 1st, 2nd and 3rd place winners.  There will be plenty of other chances to win including a prize pull and a 50/50 cash drawing. 
 
20131125-132453.jpgWith the Boo Bash growing in popularity every year, it is becoming the social event of the season.  In previous years, the event has been held at various locations in Katy.  Keri Aschoff, President of MHHA, said, “Boo Bash has sold out for the last three years straight, we moved to a bigger location to accommodate more guests.”  The Insperity Club features large windows overlooking the field and a fun, inviting banquet space for up to 300 people.  “Having our special 5th Annual Boo Bash there will not only allow us to have more guests,” Aschoff said, “it also lets us go bigger and better with decorations and entertainment.  Boo Bash is a can’t-miss event for all adults in our community who want to have a great time and help out a very good cause!” 
 
The venue at Constellation Field also provides a separate lounge/party space to accommodate the special needs of the chronically ill teens that MHHA serves.  Aschoff said, “it’s a way for them to socialize with others who understand their world.”
 
Boo Bash Sponsorship Benefits

Boo Bash Sponsorship Benefits

MHHA is a non-profit organization dedicated to outreach to homebound and hospitalized teens with dysautonomia and other hidden, life changing illnesses. MHHA was founded in 2011 by Mikaela Aschoff, after she fell ill with dysautonomia in her freshman year of high school. The organization provides gifts, hope kits, and monthly socials for these chronically ill young people as well as the annual Anti-PROM, a formal dinner and casino-night party for teens affected by hidden illnesses. MHHA also works to spread awareness of Dysautonomia.

 
Dysautonomia is considered a “hidden illness” because the sufferers often look healthy to the casual observer. It is, however, a complex condition caused by a dysfunction of the autonomic nervous system and can affect the cardiovascular, endocrine, metabolic and gastrointestinal systems. Dysautonomia can cause very painful and debilitating symptoms. For more information, visitwww.mikshiddenhearts.org.
 
If you are interested in donating an auction item or would like information about becoming an event sponsor, please contact Lisa Marlowe at lisamarlowe37@hotmail.com or call 713-261-8727.
Serving #teens and young adults with #Dysautonomia and other life-changing #ChronicIllnesses
wp-1456271913240.jpgAnti-PROM Update – Loving the excitement for all of you coming to Anti-PROM. We have handed out most of our tickets. DON’T MISS OUT!! We only have 3 more tables available. If you OR YOUR GUEST (if you are bringing one) have not registered yet, please do so asap. Don’t wait for closer to the date to try to register as they will be gone by then.
 
**Many of you said you plan on bringing a guest, but your guest has not registered yet. Please do so asap so you do not miss your chance to bring your friend.
Register online at:  www.MiksHiddenHearts.org
(Read Press Release Below)
#Dysautonomia  #ChronicIllness
Mik’s Hidden Hearts Alliance
MHHA Prom Flyer 2016

Press Release:

Anti-PROM for Houston area Chronically Ill Youth – Registration Now Open! 

When:  Sunday, April 24, 2016

Where:  Maggiano’s Little Italy (in the Ballroom) 2019 Post Oak Blvd.  Houston, Tx  77056

 

Mik’s Hidden Hearts Alliance (MHHA), a 501c3 nonprofit charity, founded by 19 year old Katy resident Mikaela Aschoff, will be holding their 4th Annual Anti-PROM for Chronically Ill high school aged teens on Sunday, April 24, 2016 from 6:00pm to 9:00pm.   The event, will be held at the Maggiano’s Little Italy in their Ballroom in Houston, Texas.

 

Who is eligible to attend?  Any teen or young adult who has Dysautonomia and other life-changing chronic illnesses.  Each hidden (chronically-ill) guest is allowed to bring one friend (teen or young adult) as their guest.

 

Special night to include:   Dinner, casino games, music by Johnny Bravo Entertainment and fantastic prizes for each of our hidden (chronically-ill) guests. Attire:  Dress is semi-formal.

 

Complimentary Tickets require online RSVP by April 15.   Tickets are first come, first serve.  Sorry, NO tickets at the door will be available. To reserve your tickets, visit www.mikshiddenhearts.org.

 

Donations are greatly appreciated!  If you would like to contribute financially to the Anti-Prom, donate 100 of your business product for our Welcome Swag Bags or donate game prize baskets for our guests, please contact Mikaela Aschoff at info@Mikshiddenhearts.org.

 

Why is it called Anti-PROM?  MHHA Anti-PROM is the opposite of a “traditional school prom” because it is specially planned and tailored for the health and physical abilities of our guests who are all Prom Kings and Queens in our book!  Our Anti-PROM is uniquely planned which includes no strobe lights and no dancing due to their physical/health limitations, but does include fun deejay music, dinner and sit down casino games in which everyone is included and has lifetime of memory making FUN!

 

 

What is a “Hidden Illness”?  Like Dysautonomia in which MHHA Founder Mik Aschoff has, a hidden illness is one in which the patient looks “normal” on the outside, but their serious illness and debilitating unpredictable symptoms are hidden to the casual observer.  Not all life-changing debilitating illnesses are visible and it is our hope at MHHA to give a voice to those we serve who feel mostly hidden in society, their unseen pain often disregarded and unfortunately sometimes forgotten by their friends due to their frequent hospitalizations and school absences.

 

Thank You!  This event would not be possible without our many generous volunteers and donors who give throughout the year, especially at our annual Boo Bash, which helps make Anti-PROM free to our guests.  They have our most heartfelt appreciation!

 

MHHA is proud partners with Lamb Foundation for Dysautonomia Research and appreciate the dedication of Dr. Numan, Dr. Butler, Rebecca Martinez (Dysautonomia Research Nurse) and the rest of the amazing team at the Dysautonomia Center for Excellence at UT Physicians / Children’s Memorial Hermann Hospital in Houston, Tx.

1978541_10104429040668870_4568793553702517803_o

We are so excited to have some many deserving hidden teens and college age young adults excited about this year’s Anti-PROM.  We are almost to full capacity so make sure to register you (and your guest if applicable) TODAY!  See below for registration information.

Parents – if you are interested in being a volunteer at the Anti-PROM as a chaperone, please register online at the same Anti-PROM link.  We will try to accommodate as many parents as possible, but must have your registration asap (sorry, not available at the door).  **If a question on the registration does not apply to you, write NA.

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.

Tickets are first come first serve and unfortunately no tickets are available at the door.

 


Being chronically-ill during your high school years is tough enough between hospitalization and being homebound most of the time.  Missing your prom should not add to your burdens!

So join us at our 3rd annual Anti-PROM that includes dinner, casino games and prizes for all our hidden (chronically-ill) guests for FREE!  (rsvp required)  (See flyer below for more details)

This year’s Anti-PROM will have MORE games, MORE room (we have the entire 2nd floor!) and MORE concierge volunteers to cater to your needs!

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.  (You are welcome to bring 1 teen or college age guest with you)891675_10104429071566950_7413211277773523743_o

Tickets are first come first serve and unfortunately no tickets are available at the door.

Parents – Please inquire availability of your staying to chaperone our event.  If there is space, we would be happy to have you!

Please share with the chronically ill youth you know!  

Title Event Sponsor:  The Follis Family

Prom Dresses donated by:  (Brand new dresses) Love Couture Fashion & Formals & (gently used) Pruning Hooks.  Stay tuned for shopping day details (to be held in late March)

1909162_10104429033158920_2225794116991040197_oSee our website for more details:   www.MiksHiddenHearts.org

#Dysautonomia #ChronicIllness #MiksAntiPROM #Prom

MHHA Prom Flyer 2015psd

1978541_10104429040668870_4568793553702517803_oBeing chronically-ill during your high school years is tough enough between hospitalization and being homebound most of the time.  Missing your prom should not add to your burdens!

So join us at our 3rd annual Anti-PROM that includes dinner, casino games and prizes for all our hidden (chronically-ill) guests for FREE!  (rsvp required)  (See flyer below for more details)

This year’s Anti-PROM will have MORE games, MORE room (we have the entire 2nd floor!) and MORE concierge volunteers to cater to your needs!

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.  (You are welcome to bring 1 teen guest with you)891675_10104429071566950_7413211277773523743_o

Tickets are first come first serve and unfortunately no tickets are available at the door.

Parents – Please inquire availability of your staying to chaperone our event.  If there is space, we would be happy to have you!

Please share with the chronically ill youth you know!  

Title Event Sponsor:  The Follis Family

Prom Dresses donated by:  (Brand new dresses) Love Couture Fashion & Formals & (gently used) Pruning Hooks.  Stay tuned for shopping day details (to be held in late March)

1909162_10104429033158920_2225794116991040197_oSee our website for more details:   www.MiksHiddenHearts.org

#Dysautonomia #ChronicIllness #MiksAntiPROM #Prom

MHHA Prom Flyer 2015psd

56813_1697051271356_2728517_o

Mik Homecoming 2010 – Freshman year in High School – Hours before our life changed forever

From the Momma Bear: October is a fun month of fall festivities and homecoming football games. I was just like many of my sweet momma friends 4 years ago coordinating my daughter’s Homecoming pictures, Homecoming mum (it’s a Texas thing!), her homecoming dress, etc. My daughter always had big goals and dreams and she started out her freshman year ready to take charge and make them happen – determined to go have fun in high school while focusing on making good grades so she could go away to college after graduation.

This October 23rd marks the 4th year anniversary when my daughter first collapsed on the dance floor at homecoming dance. Oct 23… the day my daughter’s entire “planned” future was taken away from her (or so we thought then). Her entire high school experience – gone in one night. When something we all take for granted, a working autonomic nervous system, decided to work against her pitting her body against the will of her spirit.56813_1697051351358_2025625_o

We decided to host our first Mik’s Hidden Hearts Alliance Boo Bash in 2012 to turn a very negative date in our world to a positive date (Boo Bash!) in order to raise money to spotlight the needs of the hidden teens, young adults and their families that we serve. October 23rd is also Texas Dysautonomia Awareness Day in honor of Mikaela Aschoff.

Please make plans to attend Boo Bash and help us continue our mission! It is a blast! If you can’t attend, please consider making a donation, sponsoring or purchasing raffle tickets. Go to our website for more information: www.mikshiddenhearts.org

Thank you for helping to make my daughter’s dream and vision of creating Mik’s Hidden Hearts Alliance for Dysautonomia Teens come true and giving the families we serve a voice and help them to remember they are not alone. Oct 23rd is now a positive day in our eyes. It is the date we had our eyes open to a world we did not realize unfortunately existed before we were exposed to it…. that of thousands of young people across the country who are suffering from debilitating chronic illness and their families who are in need and live this life on a regular basis. They are the unsung heroes – some of the strongest people you will ever meet – who live a mostly invisible life and deserve their time in the spotlight.

1907418_10154577838080227_5743302117458273462_nMessage from the Momma Bear:  In light of the sad passing of one of my favorite actors, Robin Williams, I felt compelled to write this post facing many who struggle with invisible battles.

Many of you know I get on my soapbox to highlight the struggles and needs of the overlooked thousands of teens and young adults who live with debilitating chronic illness. People – you and me – tend to get so busy we forget about them and their overworked and over stressed parents/caregivers.

Can you please take a moment today to send a quick encouraging message to one of your chronically ill friends or another group of people whose struggle is near and dear to my heart: one of your friends you know struggling with mental issues?

Next step:  Brainstorm ways you can serve them (the patient and their family) in big and small ways.  Something as simple as a pizza gift card can help take care of their dinner AND ease their financial stress when medical bills are never ending.  Most importantly, it helps them to remember they are not forgotten…. that they matter.

You will never truly understandBack to my soapbox:  I love the dedication of the medical teams who REALLY understands invisible illnesses and works diligently to not only ease the symptoms, but search for a cure.   This soapbox is NOT for those dedicated medical team members.  However, I REALLY get on my soapbox when some in the medical community seem to feel better when modern science can not explain a physical chronic illness so they tell these kids it’s all “in their head”. I have heard this told to countless patients we met through Mik’s charity, Mik’s Hidden Hearts Alliance, all over the country.

(1). Majority of them did not start their illness journey depressed. Living years in pain and isolation CAN cause feelings of depression. However some doctors just want to focus on the depression, claiming the physical symptoms the patients are facing are due to their “sad” feelings, refer them to a psychiatrist without trying to cure the illness or do not believe the physical symptoms are caused by a chronic illness that in many cases, still in its infancy in research.

2. No matter what, mental disorders are REAL. Those who suffer from it are similar to our chronically ill teens in that both groups fight an invisible battle everyday. Just because you can’t see it does not mean it is not real.

3. Do I believe all our chronically ill teens should be diagnosed as depressed? No – because this may not be the case (everyone gets the blues now and then) and this is like a pat on the head non-serious answer that tends to trivialize their physical symptoms AND it lessens the importance of those suffering true long term depression battles.

Both chronically ill patients and those patients suffering from a mental illness needs our understanding, compassion and hope. Treat your immediate world a little nicer. Practice patience in our rush get out of my way society. Reach out to them on a regular basis to let them know they are not forgotten.

Because you will never know how far your one smile or your one kind word can make someone’s day a little better. Spreading kindness and understanding gives life to hope. Hope encourages all to keep on trying.

And please remember – there is NO shame in asking for help when you or a loved one realizes the “blues” is much bigger than a temporary down time.  Get professional help.  If we were more transparent with one another, we would realize many people we think have it “all together” are really struggling with their own invisible battle.  Regardless what your personal battle looks like, we are all in this together.  Love thy neighbor and let’s work on making our world a little more compassionate and understanding.  End of Soap Box : )

Hope graphic copy


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement and hope to homebound and hospitalized teens and young adults who suffer from Dysautonomia and other life-changing chronic illnesses through social outreach, Hope Kits, Hospital Teen Program and Dysautonomia Awareness.  #dysautonomia #chronicillness #Hope4DysTeens #TheHidden Dysautonomia Teens

Please help spread awareness!  Like our Facebook and Twitter pages.

 Learn how you can help MHHA here.