Posts Tagged ‘anti-prom’

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We are so excited to have some many deserving hidden teens and college age young adults excited about this year’s Anti-PROM.  We are almost to full capacity so make sure to register you (and your guest if applicable) TODAY!  See below for registration information.

Parents – if you are interested in being a volunteer at the Anti-PROM as a chaperone, please register online at the same Anti-PROM link.  We will try to accommodate as many parents as possible, but must have your registration asap (sorry, not available at the door).  **If a question on the registration does not apply to you, write NA.

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.

Tickets are first come first serve and unfortunately no tickets are available at the door.

 


Being chronically-ill during your high school years is tough enough between hospitalization and being homebound most of the time.  Missing your prom should not add to your burdens!

So join us at our 3rd annual Anti-PROM that includes dinner, casino games and prizes for all our hidden (chronically-ill) guests for FREE!  (rsvp required)  (See flyer below for more details)

This year’s Anti-PROM will have MORE games, MORE room (we have the entire 2nd floor!) and MORE concierge volunteers to cater to your needs!

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.  (You are welcome to bring 1 teen or college age guest with you)891675_10104429071566950_7413211277773523743_o

Tickets are first come first serve and unfortunately no tickets are available at the door.

Parents – Please inquire availability of your staying to chaperone our event.  If there is space, we would be happy to have you!

Please share with the chronically ill youth you know!  

Title Event Sponsor:  The Follis Family

Prom Dresses donated by:  (Brand new dresses) Love Couture Fashion & Formals & (gently used) Pruning Hooks.  Stay tuned for shopping day details (to be held in late March)

1909162_10104429033158920_2225794116991040197_oSee our website for more details:   www.MiksHiddenHearts.org

#Dysautonomia #ChronicIllness #MiksAntiPROM #Prom

MHHA Prom Flyer 2015psd

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1978541_10104429040668870_4568793553702517803_oBeing chronically-ill during your high school years is tough enough between hospitalization and being homebound most of the time.  Missing your prom should not add to your burdens!

So join us at our 3rd annual Anti-PROM that includes dinner, casino games and prizes for all our hidden (chronically-ill) guests for FREE!  (rsvp required)  (See flyer below for more details)

This year’s Anti-PROM will have MORE games, MORE room (we have the entire 2nd floor!) and MORE concierge volunteers to cater to your needs!

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.  (You are welcome to bring 1 teen guest with you)891675_10104429071566950_7413211277773523743_o

Tickets are first come first serve and unfortunately no tickets are available at the door.

Parents – Please inquire availability of your staying to chaperone our event.  If there is space, we would be happy to have you!

Please share with the chronically ill youth you know!  

Title Event Sponsor:  The Follis Family

Prom Dresses donated by:  (Brand new dresses) Love Couture Fashion & Formals & (gently used) Pruning Hooks.  Stay tuned for shopping day details (to be held in late March)

1909162_10104429033158920_2225794116991040197_oSee our website for more details:   www.MiksHiddenHearts.org

#Dysautonomia #ChronicIllness #MiksAntiPROM #Prom

MHHA Prom Flyer 2015psd

1796071_10104425760522310_7602960737308177770_oWe are so excited to announce we at Mik’s Hidden Hearts Alliance are partnering again with Maggiano’s Little Italy for the 2015 3rd Annual Anti-PROM for teens & young adults with Dysautonomia and other life-changing chronic illnesses!

Save the Date:  Sunday, April 26, 2015

 We will have MORE space (the entire 2nd floor including the ballroom) and MORE casino games!  

Please message us here if you would like to be on our Anti-PROM notification list.

DID YOU ATTEND ANTI-PROM 2014??  From volunteers to guests, we would love to hear from YOU!  Please fill out this quick survey on your thoughts of our event.  We want to go bigger and better and would love your help!  Click here for the survey.

 

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement and hope to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses through social outreach, Hope Kits, Hospital Teen Program and Dysautonomia Awareness.  #dysautonomia #chronicillness #Hope4DysTeens #TheHidden Dysautonomia Teens

Please help spread awareness!  Like our Facebook and Twitter pages.

 Learn how you can help MHHA here.

We appreciate all of our angelic sponsors.  With every big or small donation, we are able to help more Hidden Teens.  Special thank you to our Gold Heart Sponsors at Lamb Foundation for Dysautonomia ResearchSpero Rehab and J Knesek & Assoc.10265505_10104429082170700_6095127991770729853_o891675_10104429071566950_7413211277773523743_o1522828_10104429081986070_4502917887365867810_o

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Me (Mik) with friends Jackie and TJ

In Mik’s Words:  It has been quite some time since I have written my last post because the monster that is dysautonomia decided to create havoc again by offering up nonstop flaring of debilitating symptoms at the beginning of the year. I have become used to change the ups and downs, so it did not surprise me when I was thrown into yet another storm. It’s in times like these when everything seems to be crumbling and pulling me down that I like to put up a fight and show that I am strong….and that the enemy can’t sway me. 

It was during one of my hospital stays when I came up with the idea to have a prom through my charity, Mik’s Hidden Hearts Alliance, for fellow chronically ill teens who are unable to attend their school’s prom. Being homebound with a debilitating illness, on the surface, can appear to take away so many special experiences such as prom. It made me think of my fellow “hidden” teens and it bothered me to think they would experience sadness when they saw pictures on social media of their friends who were able to attend and they would miss out on a night full of fun, friends, and great memories…..  And that just was not acceptable for me. 

The Anti Prom Vision:  Over the next few weeks, my vision of the “Anti Prom” for chronically ill teens began to develop.  I decided to name it “Anti Prom” because it would be the opposite of a traditional prom and needed to be unique and suit chronically ill teens who may not have the physical endurance to dance or stand. After discussing my idea with my mom, who fully loved and supported the idea and then discussed the idea with some of our awesome group of dysautonomia families, preparations for the Anti- Prom took off.  Not only did they take my vision and run with it, they made it even better than I imagined.  This event would have never happened without each and everyone of their help, input and ideas!  I will forever be thankful!!

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Krystal, Caitlin and I having fun “shopping” for prom dresses donated by Pruning Hooks Ministry

Local ministry, Pruning Hooks Ministry, generously donated over 80 prom dresses for our guests to “shop” from.  Our Anti Prom committee decided to have a casino night for fun sit down entertainment. 

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Makeover time!

Our generous donors donated some AMAZING prizes including:  Kindle Fire, Wii System, Flat Screen TV, and much much more.  We were gifted with so many prizes that each hidden teen did not leave empty handed.  Ulta donated makeup supplies to help with our teen girls makeovers (and some amazing makeup and hair stylist came to help!)  

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Cake by Creating Memories Cakes and Catering

The much anticipated night was held on May 3, 2013 and was held at the beautiful Courtyard on St. James Place.  Their service, staff and dinner was impeccable!  Our guests enjoyed appetizers (courtesy of Frito Lay and a gorgeous fruit display by Creating Memories Cakes & Catering), sit down dinner, scrumptious cake (Creating Memories Cakes & Catering), deejay services by Johnny Bravo, fun casino games (courtesy of Blackjack Casino Rentals) and professional photography by Tiffany Daniel, Carl Miller and Brett Perroux. 

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Table erupted in cheers when players beat the dealer!

I was excited when the night of the Anti-Prom finally came around. I was incredibly happy to see our teen guests interacting and having a great time – the smiles on everyones’ faces were priceless. The experience was kind of surreal, like a dream. For most of the night, it was difficult to tell who was having more fun:  us teens or our adult volunteers who led the games. 

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Justin, Michael and Danni pondering their next move!

I was so overjoyed that a simple vision of bringing light to the hidden – having this Anti Prom –  was being fulfilled that night.

Due to my own struggle with this illness and the isolation and hardships it can sometimes bring, it is my personal mission to try to help other chronically ill teens not to feel hidden or miss out on some fun teen experiences.   No one should have to feel invisible and lonely; teens with dysautonomia or other illnesses should know that they matter, that there are people who care, and that they are not alone. 

I am very thankful for all of our volunteers (so many to list!) who made this night happen. 

I am not completely sure they, including our donors, realize the full extent of what they gifted us teens that night.  For them, it may have felt they were helping to give chronically ill teens a fun night away from doctor appointments and hospitalizations. 

But for us teens, it was more than a night.  It is a cherished forever memory. 

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Dysautonomia teen Josh was the grand prize winner for the evening (Flat screen tv and Wii gift package) Congratulations Josh!

 

Below are more fun pictures from the night….  Also, as a reminder to those who are still learning about hidden illnesses.  Excluding our volunteers, most of those pictured do not “look” sick, however, they suffer daily from debilitating chronic illness.

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We are getting many great questions in about our first annual Mik’s Hidden Hearts Alliance “Anti-prom”.  Here is one for today:

Why is it called “anti-prom”?

Our first annual Mik’s Hidden Hearts Alliance prom is called the “anti-prom” because many teens with debilitating chronic illness do not fit in at a regular prom and live a life that is opposite of a “regular” teen life.  Regular prom includes dancing, standing/socializing and long hours.  Many chronically ill teens are unable to even stand for a few minutes and can feel excluded because they miss so much school and have difficulty feeling included with friends.  Needless to say, because they are just one of a few chronically ill at a regular prom, attending something as fun as prom can make them feel even more hidden. 

In between hospitalizations, doctor appointments and many being homebound from school, they are not able to engage in many fun teen activities… especially prom.  The anti-prom is the opposite of a regular prom in that it is planned by chronically ill teens FOR chronically ill teens and focuses on fun activities they can do sitting down (casino games, dinner being served to them and great volunteers that will assist them with whatever they need.) 

Yes, they will get to dress up and get to socialize with other teens who understand their “opposite” world.  However, it is planned all within their endurance and abilities.  At the anti-prom, they will not be one of a few that is chronically ill.  They will be surrounded by teens just like them! 

The courageous teens on our anti-prom committee really want to work on spreading hope to their fellow chronically ill teens by helping them embrace this opposite world and learning to work within it…. All the while not missing out on key teen experiences like a prom. 

Chronically-ill teens – join us at the anti-prom!  Financial assistance available!  See more on our website at:  www.mikshiddenhearts.org

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