Posts Tagged ‘chronically ill’

1978541_10104429040668870_4568793553702517803_o

We are so excited to have some many deserving hidden teens and college age young adults excited about this year’s Anti-PROM.  We are almost to full capacity so make sure to register you (and your guest if applicable) TODAY!  See below for registration information.

Parents – if you are interested in being a volunteer at the Anti-PROM as a chaperone, please register online at the same Anti-PROM link.  We will try to accommodate as many parents as possible, but must have your registration asap (sorry, not available at the door).  **If a question on the registration does not apply to you, write NA.

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.

Tickets are first come first serve and unfortunately no tickets are available at the door.

 


Being chronically-ill during your high school years is tough enough between hospitalization and being homebound most of the time.  Missing your prom should not add to your burdens!

So join us at our 3rd annual Anti-PROM that includes dinner, casino games and prizes for all our hidden (chronically-ill) guests for FREE!  (rsvp required)  (See flyer below for more details)

This year’s Anti-PROM will have MORE games, MORE room (we have the entire 2nd floor!) and MORE concierge volunteers to cater to your needs!

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.  (You are welcome to bring 1 teen or college age guest with you)891675_10104429071566950_7413211277773523743_o

Tickets are first come first serve and unfortunately no tickets are available at the door.

Parents – Please inquire availability of your staying to chaperone our event.  If there is space, we would be happy to have you!

Please share with the chronically ill youth you know!  

Title Event Sponsor:  The Follis Family

Prom Dresses donated by:  (Brand new dresses) Love Couture Fashion & Formals & (gently used) Pruning Hooks.  Stay tuned for shopping day details (to be held in late March)

1909162_10104429033158920_2225794116991040197_oSee our website for more details:   www.MiksHiddenHearts.org

#Dysautonomia #ChronicIllness #MiksAntiPROM #Prom

MHHA Prom Flyer 2015psd

1978541_10104429040668870_4568793553702517803_oBeing chronically-ill during your high school years is tough enough between hospitalization and being homebound most of the time.  Missing your prom should not add to your burdens!

So join us at our 3rd annual Anti-PROM that includes dinner, casino games and prizes for all our hidden (chronically-ill) guests for FREE!  (rsvp required)  (See flyer below for more details)

This year’s Anti-PROM will have MORE games, MORE room (we have the entire 2nd floor!) and MORE concierge volunteers to cater to your needs!

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.  (You are welcome to bring 1 teen guest with you)891675_10104429071566950_7413211277773523743_o

Tickets are first come first serve and unfortunately no tickets are available at the door.

Parents – Please inquire availability of your staying to chaperone our event.  If there is space, we would be happy to have you!

Please share with the chronically ill youth you know!  

Title Event Sponsor:  The Follis Family

Prom Dresses donated by:  (Brand new dresses) Love Couture Fashion & Formals & (gently used) Pruning Hooks.  Stay tuned for shopping day details (to be held in late March)

1909162_10104429033158920_2225794116991040197_oSee our website for more details:   www.MiksHiddenHearts.org

#Dysautonomia #ChronicIllness #MiksAntiPROM #Prom

MHHA Prom Flyer 2015psd

Image

One of our happy Hope Kit recipients

The next round of the Mik’s Hidden Hearts Alliance Hope Kits for teens with Dysautonomia and other hidden chronic illnesses will be sent out after Anti-PROM.  Hope Kits are filled with teen focused gifts that can be used either for the homebound teen patient or for those hospitalized.

With hospitalizations and the busy fun of planning Anti-PROM, our next round of Hope Kits will go out towards the end of the month.

We would love for you to send in a nomination for the deserving chronically-ill teen in your life.  Click here to nominate.

Please keep in mind we send out Hope Kits as donations become available and work through our nomination list as quick as we can.  To date, we have sent hundreds across the US.

 

If you would like to help donate towards the cost of Hope Kits and shipping costs, we appreciate it!  Click here to donate.

To apply, your nominated recipient must be between the ages of 12 and 19 years of age and be either hospitalized or homebound under a doctor’s care for their chronic hidden illness. This information is kept confidential. Applications will be accepted and Hope Kits will be provided to qualified recipients as donations become available.

Please contact us here to check the status of your nomination.

Want to know more about the impact my team at MHHA is having on teens across the country?  

Watch this video!

 

 


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses through social outreach, Hope Kits, Hospital Teen Program and Dysautonomia Awareness.  #dysautonomia #chronicillness #Hope4DysTeens #TheHidden

Please help spread awareness!  Like our Facebook and Twitter pages.

 Learn how you can help MHHA here.

We appreciate all of our angelic sponsors.  With every big or small donation, we are able to help more Hidden Teens.  Special thank you to our Gold Heart Sponsors at Lamb Foundation for Dysautonomia ResearchSpero Rehab and J Knesek & Assoc.

ImageI wanted to give my teen friends a sneak peek of just one of the items that will be included in your anti-PROM swag bag.  

Check out the picture to the left for the latest Mik’s Hidden Hearts Alliance Shirt design.  

 

And I am very excited by all the Anti-PROM prize donations that are coming in.  

Can not wait to share this fun day with all of you.

 

Anti-PROM RSVPs due today!  Register online here.

**Hidden teens:  if you are bringing a guest, they need to be registered too through the above registration link.

Last, but not least, I would like to express my appreciation again to my co-chair, Lori Allen, for really going beyond the call of duty to help make this year’s Anti-PROM at Maggianos a success.  


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.  #dysautonomia #chronicillness 

Please help spread awareness!  Like our Facebook and Twitter pages.  

Image

 

Movie Hidden Teen Social – Tomorrow!  Laughter is the best medicine!  Join us tomorrow to see the latest Muppets Most Wanted (one of Mik’s favs) at the gorgeous Palladium movie theater in Richmond, Tx.  

Don’t Forget!  Message us so we can know to expect you and save you a spot (Message through our website www.mikshiddenhearts.org)

 

See movie details and ticket cost here:  http://www.mikshiddenhearts.com/apps/calendar/

 

Also, don’t forget!  Anti-PROM rsvps due by April 1st.  Hope to see you there!

 

Mik’s Hidden Hearts Alliance is a 501c3 charity dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

ImageHello all – Mik’s mom here.  I am going to completely show my age and quote the classic 1980s teen flick Sixteen Candles.  It is in the scene towards the end of the movie, (paraphrased) when all the students were going to the dance.  One of the student’s parents forced him to go to the dance – they literally shoved him through the door and closed it.  And he responded by beating on the closed door, shouting to his parents, “BUT I WANT TO HANG OUT WITH YOU GUYS”.  

At Mik’s Hidden Hearts Alliance, through the countless messages we are receiving, we are learning there is a growing trait among hidden (chronically-ill) teens across the country who are just like the guy at the dance in Sixteen Candles.  

What is this common unspoken trait phenomenon sweeping the nation among chronically ill teens?  After spending a long time in and out of hospitals / having difficulty going to school on a regular basis, relating to “normie” (healthy) teens starts to become a challenge – you might, like the guy in Sixteen Candles, actually… GASP… prefer the company of your parents, family and adult friends!  We have heard this so much that it is literally becoming an unspoken phenomenon and many question “Am I Normal?”.  

You hidden teens might find you can identify with “older”  people more (the horror!)  You might find yourself just unable to relate to some people your own age because of their… ahem… teen drama.  Yes, general teen issues for all is important in their world and we should give everyone the grace to understand that we should not play the comparison game with our various inner battles (never want to trivialize that), but as you grow and mature, you realize somethings that you thought were so important prior to your illness (trends, clothes, latest teen gossip, having the latest gadget, where you want to go to Spring Break with your friends, etc) become UNIMPORTANT.  Why?  Because you begin to wish for the most basic, yet one of  the most important, blessings:  the gift of health.  

Trust me, Mik and I completely understand this phenomenon we are hearing about.  And, we both agree identifying with adults and being friends with them is COMPLETELY OKAY and NORMAL!  (Even enjoying the company of your very talkative and slightly overprotective mom is completely normal… even though SHE maybe on the far quirky edge of what is deemed “normal”… not that I know of any of them personally…. right, Mik?)  

ImageHowever, we also agree it is important to find teen friends to socialize with that not only accepts you, but UNDERSTANDS you.  As much as I wished I could be Mik’s everything:  her mom, her caregiver, her champion, her super BFF (she just loves when I speak Teen Slang!) – I realize humbly… I just can not.  

I can not fill the gap that true goodhearted friends her age can.  Through her illness journey, Mik has met some amazing fellow hidden teen friends.  Friends she would not have met if she stayed at home.  Friends who make this journey easier because they are here with her.  And she wants this kind of support system for all her fellow hidden teens across this country too.  

That is why Mik continues to push through and work on her ideas to bring socials and events to Houston area chronically ill teens. And this is why she is working with an amazing team of advisor mentors – all specialists in their given fields – to determine the best way to bring MHHA ideas across the country.   

It is Mik’s hope and dream that her fellow chronically ill teens will get to attend socials ACROSS THE COUNTRY that help them to interact with fellow chronically ill teens that are uplifting, positive and just focus on the FUN.  (more on this soon…  Stay tuned!)

Image

Mik’s Pic in The Katy Magazine news article

You have question or have ideas on how to reach out to fellow hidden teens in your community?  We would love to hear from you!  Message Mik at:  info@mikshiddenhearts.org  

———————–

Houston area – chronically ill teens – RSVP for the Anti-Prom TODAY and share, share, share with other chronically ill teens.  MHHA is a very friendly network of chronically-ill teens.  Click here for more info.

Image

 

Mik’s Hidden Hearts Alliance mission objectives:
 

Social Outreach – Outreach program to foster our growing community and to help teens with Dysautonomia and other life-changing hidden chronic illnesses to get out of the home to experience fun classes and “teen experience events” like our annual Anti-Prom!

Hope Kits (Click here to nominate a deserving teen!) – Teen-focused gift kits sent across the country to bring hope and the knowledge they are not hidden.

Dysautonomia Awareness – Events and community service projects to highlight Dysautonomia and its effects on teens and their families and to encourage more research in this much needed area.
 
Support Network – Hidden teens and their families often feel isolated.  MHHA goal is to help bring these families together for support.
 
Hospitalized Teen Programs – Because teens are typically in a children’s hospital, MHHA works to provide teen-focused toiletries, activities, books, gifts and video games to help make their stay more enjoyable.  

ImageSpread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

BIG thank you to all our volunteers who are contacting us to help. Especially big thank you to Lori Allen who has graciously volunteered to co-chair this event with Mik. As well as Aunt Ronda who is helping to co co chair the event (don’t judge my writing skills! Ha!) Momma Bear Keri will be working behind the scenes. Mik has been quietly working on ideas since the LAST prom. Can’t wait for y’all to see all their hardwork!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

How can I help?

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.