Posts Tagged ‘Event’

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Photography courtesy of Brett Perroux

RSVP due tomorrow for Anti-PROM for chronically-ill teens!  Sorry, no tickets available at the door.

Chronically-ill teens Anti-PROM is almost here!  We need your rsvp (and your guest if applicable) by tomorrow!  We want to accommodate as many teens as possible so share the news and get your rsvp in today.  Click here to register.  Sorry, but registering at the door is not available. 

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

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Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

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Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

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HOW CAN I HELP?

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Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. 

Feel free to share the flyer below!

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Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.  #dysautonomia #chronicillness #prom #POTS

The dress shopping day for last year's Anti-Prom

The dress shopping day for last year’s Anti-Prom

Need a Prom Dress for this year’s Anti-Prom?  We have dozens upon dozens of gorgeous gowns donated by Pruning Hooks Ministries.  The big “shopping” day will be THIS Sunday from 2:00 – 4:00 in Old Town Katy, Tx.  RSVP here to receive location information.  

Looking forward to seeing you there!

And don’t forget!  RSVPs for the Anti-PROM are due April 1st.  See below for more details…

 

 

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

 

 

 

 

 

 


 

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

Image

Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

Image

Photography courtesy of Brett Perroux

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

Image

Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

ImageHello all – Mik’s mom here.  I am going to completely show my age and quote the classic 1980s teen flick Sixteen Candles.  It is in the scene towards the end of the movie, (paraphrased) when all the students were going to the dance.  One of the student’s parents forced him to go to the dance – they literally shoved him through the door and closed it.  And he responded by beating on the closed door, shouting to his parents, “BUT I WANT TO HANG OUT WITH YOU GUYS”.  

At Mik’s Hidden Hearts Alliance, through the countless messages we are receiving, we are learning there is a growing trait among hidden (chronically-ill) teens across the country who are just like the guy at the dance in Sixteen Candles.  

What is this common unspoken trait phenomenon sweeping the nation among chronically ill teens?  After spending a long time in and out of hospitals / having difficulty going to school on a regular basis, relating to “normie” (healthy) teens starts to become a challenge – you might, like the guy in Sixteen Candles, actually… GASP… prefer the company of your parents, family and adult friends!  We have heard this so much that it is literally becoming an unspoken phenomenon and many question “Am I Normal?”.  

You hidden teens might find you can identify with “older”  people more (the horror!)  You might find yourself just unable to relate to some people your own age because of their… ahem… teen drama.  Yes, general teen issues for all is important in their world and we should give everyone the grace to understand that we should not play the comparison game with our various inner battles (never want to trivialize that), but as you grow and mature, you realize somethings that you thought were so important prior to your illness (trends, clothes, latest teen gossip, having the latest gadget, where you want to go to Spring Break with your friends, etc) become UNIMPORTANT.  Why?  Because you begin to wish for the most basic, yet one of  the most important, blessings:  the gift of health.  

Trust me, Mik and I completely understand this phenomenon we are hearing about.  And, we both agree identifying with adults and being friends with them is COMPLETELY OKAY and NORMAL!  (Even enjoying the company of your very talkative and slightly overprotective mom is completely normal… even though SHE maybe on the far quirky edge of what is deemed “normal”… not that I know of any of them personally…. right, Mik?)  

ImageHowever, we also agree it is important to find teen friends to socialize with that not only accepts you, but UNDERSTANDS you.  As much as I wished I could be Mik’s everything:  her mom, her caregiver, her champion, her super BFF (she just loves when I speak Teen Slang!) – I realize humbly… I just can not.  

I can not fill the gap that true goodhearted friends her age can.  Through her illness journey, Mik has met some amazing fellow hidden teen friends.  Friends she would not have met if she stayed at home.  Friends who make this journey easier because they are here with her.  And she wants this kind of support system for all her fellow hidden teens across this country too.  

That is why Mik continues to push through and work on her ideas to bring socials and events to Houston area chronically ill teens. And this is why she is working with an amazing team of advisor mentors – all specialists in their given fields – to determine the best way to bring MHHA ideas across the country.   

It is Mik’s hope and dream that her fellow chronically ill teens will get to attend socials ACROSS THE COUNTRY that help them to interact with fellow chronically ill teens that are uplifting, positive and just focus on the FUN.  (more on this soon…  Stay tuned!)

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Mik’s Pic in The Katy Magazine news article

You have question or have ideas on how to reach out to fellow hidden teens in your community?  We would love to hear from you!  Message Mik at:  info@mikshiddenhearts.org  

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Houston area – chronically ill teens – RSVP for the Anti-Prom TODAY and share, share, share with other chronically ill teens.  MHHA is a very friendly network of chronically-ill teens.  Click here for more info.

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Mik’s Hidden Hearts Alliance mission objectives:
 

Social Outreach – Outreach program to foster our growing community and to help teens with Dysautonomia and other life-changing hidden chronic illnesses to get out of the home to experience fun classes and “teen experience events” like our annual Anti-Prom!

Hope Kits (Click here to nominate a deserving teen!) – Teen-focused gift kits sent across the country to bring hope and the knowledge they are not hidden.

Dysautonomia Awareness – Events and community service projects to highlight Dysautonomia and its effects on teens and their families and to encourage more research in this much needed area.
 
Support Network – Hidden teens and their families often feel isolated.  MHHA goal is to help bring these families together for support.
 
Hospitalized Teen Programs – Because teens are typically in a children’s hospital, MHHA works to provide teen-focused toiletries, activities, books, gifts and video games to help make their stay more enjoyable.  

To add on to my popular post 6 Things (chronically ill) Teens should do this Summer, I wanted to add on to my suggestion of checking out free events in your area.  

Look at your local library summer schedule and you may be pleasantly surprised to see they have some great events planned for teens (bonus – they are INSIDE!  Avoid the heat!)

For example, we are in the Houston, Texas area and our local library is hosting the following fun class every Monday afternoon.

Let’s try to gather our fellow hidden teens and join in at these free events.  Let us know if you plan on attending one in your community and hopefully help you link up to others in your area.

And, as always, when participating at various events, use your best judgement that works for YOU.  Is everyone standing to play a game?  Modify it and make sure you sit down.  Whatever is your concerns or issues with your illness can be integrated in whatever you would like to participate in.

Teens Travel Underhill…

Submitted by Jennifer Finch on Fri, 06/14/2013 – 2:04pm

This Monday at 3:30 the teens are traveling through the world of Fairy Tales.  Go on a Scavenger Hunt to Grandmother’s house.  Participate in sword fighting and an archery contest.  Play a life sized chess match.  As always snacks will be provided and teens 12-18 are welcome.

http://www.hcpl.net/content/teens-travel-underhill

Mikaela, Dysautonomia and SchoolPosted by Mikaela Aschoff with Mik’s Hidden Hearts Alliance.

For more Mik’s Hidden Hearts Alliance updates, check our website at:www.mikshiddenhearts.org or our Facebook page here.

We help teens and their families who have Dysautonomia and other life changing hidden illnesses.

Dysautonomia Awareness – Support Group – Socials – Hope Kits

Mik’s Hidden Hearts Alliance for Teens with Dysautonomia will have a booth at this year’s Katy Rice Harvest Festival to be held in Katy, Tx.  Over 45,000 people each year visit this popular family event.

We thank the Katy Chamber of Commerce for supporting Mik’s Hidden Hearts Alliance and helping us to bring Dysautonomia Awareness to our community.

Visit us in booth 507!