Posts Tagged ‘#Hope4Dysteens’

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We are so excited to have some many deserving hidden teens and college age young adults excited about this year’s Anti-PROM.  We are almost to full capacity so make sure to register you (and your guest if applicable) TODAY!  See below for registration information.

Parents – if you are interested in being a volunteer at the Anti-PROM as a chaperone, please register online at the same Anti-PROM link.  We will try to accommodate as many parents as possible, but must have your registration asap (sorry, not available at the door).  **If a question on the registration does not apply to you, write NA.

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.

Tickets are first come first serve and unfortunately no tickets are available at the door.

 


Being chronically-ill during your high school years is tough enough between hospitalization and being homebound most of the time.  Missing your prom should not add to your burdens!

So join us at our 3rd annual Anti-PROM that includes dinner, casino games and prizes for all our hidden (chronically-ill) guests for FREE!  (rsvp required)  (See flyer below for more details)

This year’s Anti-PROM will have MORE games, MORE room (we have the entire 2nd floor!) and MORE concierge volunteers to cater to your needs!

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.  (You are welcome to bring 1 teen or college age guest with you)891675_10104429071566950_7413211277773523743_o

Tickets are first come first serve and unfortunately no tickets are available at the door.

Parents – Please inquire availability of your staying to chaperone our event.  If there is space, we would be happy to have you!

Please share with the chronically ill youth you know!  

Title Event Sponsor:  The Follis Family

Prom Dresses donated by:  (Brand new dresses) Love Couture Fashion & Formals & (gently used) Pruning Hooks.  Stay tuned for shopping day details (to be held in late March)

1909162_10104429033158920_2225794116991040197_oSee our website for more details:   www.MiksHiddenHearts.org

#Dysautonomia #ChronicIllness #MiksAntiPROM #Prom

MHHA Prom Flyer 2015psd

1978541_10104429040668870_4568793553702517803_oBeing chronically-ill during your high school years is tough enough between hospitalization and being homebound most of the time.  Missing your prom should not add to your burdens!

So join us at our 3rd annual Anti-PROM that includes dinner, casino games and prizes for all our hidden (chronically-ill) guests for FREE!  (rsvp required)  (See flyer below for more details)

This year’s Anti-PROM will have MORE games, MORE room (we have the entire 2nd floor!) and MORE concierge volunteers to cater to your needs!

Register now for your complimentary tickets for this year’s 3rd annual Anti-PROM for Chronically Ill Teens and College Age young adults to be held at Maggiano’s Ballroom in Houston, Tx.  (You are welcome to bring 1 teen guest with you)891675_10104429071566950_7413211277773523743_o

Tickets are first come first serve and unfortunately no tickets are available at the door.

Parents – Please inquire availability of your staying to chaperone our event.  If there is space, we would be happy to have you!

Please share with the chronically ill youth you know!  

Title Event Sponsor:  The Follis Family

Prom Dresses donated by:  (Brand new dresses) Love Couture Fashion & Formals & (gently used) Pruning Hooks.  Stay tuned for shopping day details (to be held in late March)

1909162_10104429033158920_2225794116991040197_oSee our website for more details:   www.MiksHiddenHearts.org

#Dysautonomia #ChronicIllness #MiksAntiPROM #Prom

MHHA Prom Flyer 2015psd

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Mik Homecoming 2010 – Freshman year in High School – Hours before our life changed forever

From the Momma Bear: October is a fun month of fall festivities and homecoming football games. I was just like many of my sweet momma friends 4 years ago coordinating my daughter’s Homecoming pictures, Homecoming mum (it’s a Texas thing!), her homecoming dress, etc. My daughter always had big goals and dreams and she started out her freshman year ready to take charge and make them happen – determined to go have fun in high school while focusing on making good grades so she could go away to college after graduation.

This October 23rd marks the 4th year anniversary when my daughter first collapsed on the dance floor at homecoming dance. Oct 23… the day my daughter’s entire “planned” future was taken away from her (or so we thought then). Her entire high school experience – gone in one night. When something we all take for granted, a working autonomic nervous system, decided to work against her pitting her body against the will of her spirit.56813_1697051351358_2025625_o

We decided to host our first Mik’s Hidden Hearts Alliance Boo Bash in 2012 to turn a very negative date in our world to a positive date (Boo Bash!) in order to raise money to spotlight the needs of the hidden teens, young adults and their families that we serve. October 23rd is also Texas Dysautonomia Awareness Day in honor of Mikaela Aschoff.

Please make plans to attend Boo Bash and help us continue our mission! It is a blast! If you can’t attend, please consider making a donation, sponsoring or purchasing raffle tickets. Go to our website for more information: www.mikshiddenhearts.org

Thank you for helping to make my daughter’s dream and vision of creating Mik’s Hidden Hearts Alliance for Dysautonomia Teens come true and giving the families we serve a voice and help them to remember they are not alone. Oct 23rd is now a positive day in our eyes. It is the date we had our eyes open to a world we did not realize unfortunately existed before we were exposed to it…. that of thousands of young people across the country who are suffering from debilitating chronic illness and their families who are in need and live this life on a regular basis. They are the unsung heroes – some of the strongest people you will ever meet – who live a mostly invisible life and deserve their time in the spotlight.

ImageI wanted to give my teen friends a sneak peek of just one of the items that will be included in your anti-PROM swag bag.  

Check out the picture to the left for the latest Mik’s Hidden Hearts Alliance Shirt design.  

 

And I am very excited by all the Anti-PROM prize donations that are coming in.  

Can not wait to share this fun day with all of you.

 

Anti-PROM RSVPs due today!  Register online here.

**Hidden teens:  if you are bringing a guest, they need to be registered too through the above registration link.

Last, but not least, I would like to express my appreciation again to my co-chair, Lori Allen, for really going beyond the call of duty to help make this year’s Anti-PROM at Maggianos a success.  


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.  #dysautonomia #chronicillness 

Please help spread awareness!  Like our Facebook and Twitter pages.  

From the Momma Bear:  We are still on cloud nine from all the excitement, generosity and outright great time for Boo Bash held this past Saturday to help us raise money to serve chronically ill teens in our community and across the nation.  As soon as Mik is recovered (energy crash… To Be Expected), we are working on the blog post to share with you all the details from the night and it will be posted soon.

Mik before the Homecoming Dance where she collapsed for the first time.

Mik before the Homecoming Dance where she collapsed for the first time.

I did want to take this moment to highlight a bittersweet day for us coming up on October 23.  This was the first day Mik ever collapsed.  The first day she ever showed symptoms of Dysautonomia.  She went from a regular teenager girl dancing at her first freshman year homecoming dance… to a teen who collapsed on the dance floor and was slumped over in a wheelchair leaving the dance.  Doctors had no idea initially what happened to Mik.  I never knew something like Dysautonomia existed.  Our eyes were opened…

This day is bittersweet because I would never ever wish Dysautonomia life on anybody… much less my daughter.  It was not just her life that changed that day… it was our entire family’s.  If I could personally suffer the daily pain and exhaustion she faces, I would do it in a minute.  I wished with all my might it was my very own burden to bear… not hers… and not her brother and sister’s.

This day is bittersweet because it opened my eyes and changed me permanently to become a better person.  Before our “dysautonomia world” I, like many of my good friends, did charity work through church and other organizations.  I liked to think if I heard of a need, I would figure out how to help.  Never did I hear or realize the plight of families who had teens living with debilitating chronic illness.  I heard about the sweet families who needed a fundraiser to help with expenses after an unexpected accident, the unfortunate diagnosis of cancer, etc… but never Dysautonomia (or the many other life-changing chronic illnesses).  Because of the longterm duration of the illness and because families have a tendency just to “circle their wagons” and do what they can to help their teens and survive financially, they were hidden…

This day is bittersweet because through Mik’s difficulties she ultimately had a vision to create Mik’s Hidden Hearts Alliance to help reach out to other teens like herself that were homebound.  Her vision was to help the teens in the children’s hospital and bring them teen friendly supplies (instead of having to use the baby shampoo, toothpaste, etc)  Through her inspiring vision, she has brought together some of the best friends, families and teens I could ever wish to meet.  Whether they are near or far, we are becoming one big MHHA family and I can not imagine our world without them.

At Mik’s Hidden Hearts Alliance, we pride ourselves on being a very welcoming (no cliques) positive, focus on HOPE outreach group for chronically ill teens and their families.  If you have been a little nervous to try one of our meetings or socials, I greatly encourage you to come.  If you did not know anyone when you came, you will have friends by the time you leave!  Check out our Events Calendar here. State of Texas Dysautonomia Awareness Day Oct 23, 2012 in honor of Mik

This upcoming Oct 23rd day is bittersweet because I am so proud that just one year ago, the State of Texas proclaimed it the “Dysautonomia Awareness Day” in honor of Mikaela “Mik” Aschoff.  Mik was surprised at last year’s Boo Bash for this honor and we greatly appreciate State Representative Bill Callegari and State Representative John Zerwas for the proclamation.  The City of Katy, our hometown, also recognized Oct 23 as the Mikaela Aschoff Dysautonomia Awareness Day signed by Mayor Don Elder, Jr.

October 23 Dysautonomia Awareness Day was created in Mik’s honor, but Mik will be the first one to tell you – it is in honor of all her fellow hidden teens.  They inspire our family to move forward with MHHA.  Every letter, phone call, Hope Kit recipient photos and more encourage us to move ahead and reach out to even more families.

Mik's little brother Kyle - a big part of the team work for MHHA. He is our "muscle" for the heavy lifting and always has us laughing during his many photobombing attempts!

Mik’s little brother Kyle – a big part of the team work for MHHA. He is our “muscle” for the heavy lifting and always has us laughing during his many photobombing attempts!

MHHA is an Aschoff family charity that could not be possible without the teamwork of her brother and sister, our amazing family, friends (who have stuck with us during this journey) and anonymous donor angels.  It takes all of us working together to make this happen.

The State of Texas resolution is pictured above.  Below is the wording for the City of Katy.  I am thankful for all of you who have turned this heartbreaking day of Oct 23, 2010 into a day filled with hope, love and friendship through MHHA.  

We are going to get through this together!  (And work with the wonderful Lamb Foundation for Dysautonomia Research to get working on that cure!)  And we appreciate EVERYTHING Dysautonomia International is doing to bring about awareness and advocacy.

Mik's little sister helping at a Dysautonomia Awareness event. She's always a big helper and loves helping to pack Hope Kits

Mik’s little sister helping at a Dysautonomia Awareness event. She’s always a big helper and loves helping to pack Hope Kits

Mikaela Aschoff Dysautonomia Awareness Day

Oct 23, 2012

Whereas:  Mikaela Aschoff has been the visionary and founder of Mik’s Hidden Hearts Alliance, a charity dedicated to helping teens with Dysautonomia and other hidden chronic illnesses; and

Whereas:  Mikaela Aschoff is leading the charge for Dysautonomia Awareness in our community and has set a determined goal to bring about awareness across the nation; and

Whereas:  Mikaela Aschoff has been a driving force to develop outreach programs for both homebound and hospitalized teens; and

Whereas:  Mikaela Aschoff has inspired and led donation drives in which hundreds of gift bags have been distributed to the local children’s hospital and Hope Kits sent to homebound teens, both locally and nationally.

Whereas:  Mikaela Aschoff, despite her own debilitating, unpredictable symptoms of Dysautonomia, is dedicated to showing other teens how to focus on what they can do and not on what their bodies limit them to do.  And, most importantly, TO NEVER GIVE UP! Now, Therefore, I, Don Elder Jr., Mayor, hereby recognize October 23, 2012 as Mikaela Aschoff Dysautonomia Awareness Day in the City of Katy, and encourage everyone to become better informed about this disorder and the persons whose lives it affects on a daily basis. Posted by  www.mikshiddenhearts.org.  Serving teens with dysautonomia and other hidden chronic illnesses.