Posts Tagged ‘NCS’

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Photography courtesy of Brett Perroux

RSVP due tomorrow for Anti-PROM for chronically-ill teens!  Sorry, no tickets available at the door.

Chronically-ill teens Anti-PROM is almost here!  We need your rsvp (and your guest if applicable) by tomorrow!  We want to accommodate as many teens as possible so share the news and get your rsvp in today.  Click here to register.  Sorry, but registering at the door is not available. 

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

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Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

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Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

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HOW CAN I HELP?

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Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. 

Feel free to share the flyer below!

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Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.  #dysautonomia #chronicillness #prom #POTS

 

 

Because we are meeting more and more new teens joining our Mik’s Hidden Hearts Alliance family, we are reblogging one of our most popularly requested articles about Mik’s Story from Katy Magazine.

 

Please share and together let’s bring awareness!

 

Mikaela Aschoff collapsed at her first Homecoming dance,
but doctors had no idea what was wrong with her. After a
series of tests, she was diagnosed with a devastating disease.
now this Katy teen finds purpose and meaning giving gift
boxes of love to other teens with chronic illnesses.
Here is her story…

Click here to read more…

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

The dress shopping day for last year's Anti-Prom

The dress shopping day for last year’s Anti-Prom

Need a Prom Dress for this year’s Anti-Prom?  We have dozens upon dozens of gorgeous gowns donated by Pruning Hooks Ministries.  The big “shopping” day will be THIS Sunday from 2:00 – 4:00 in Old Town Katy, Tx.  RSVP here to receive location information.  

Looking forward to seeing you there!

And don’t forget!  RSVPs for the Anti-PROM are due April 1st.  See below for more details…

 

 

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

 

 

 

 

 

 


 

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

Image

Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

Image

Photography courtesy of Brett Perroux

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

Image

Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

October 23rd is officially the Texas Dysautonomia Awareness Day in honor of Mik’s Hidden Hearts Alliance founder, teenager Mikaela “Mik” Aschoff.  Or, as Mik likes to say – in honor of all her fellow dys friends : )

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Texas Dysautonomia Awareness Day Proclamation signed on Oct 23, 2012!

October 23 (2010) is also the anniversary for the first time Mik collapsed on the dance floor at her 9th grade high school homecoming dance.  So to make this negative day positive, MHHA requested the State of Texas declare this life changing day into Dysautonomia Awareness Day!

We encourage this to move forward to other states!  Join the MHHA challenge and read more about how to get proclamations in your area through Dysautonomia International.

And as always, we are very proud partners with the Lamb Foundation for Dysautonomia Research who work with Mik’s great team of doctors at the Dysautonomia Clinic for Excellence at the Children’s Memorial Hermann / UTHSC Physicians in Houston, Tx.  

Posted by www.mikshiddenhearts.org.

We serve teens with Dysautonomia and other hidden life-changing chronic illnesses.

Know of a deserving “hidden” homebound or hospitalized teen?  Nominate them for a Hope Kit filled with teen inspired gifts!  Go to our website at www.mikshiddenhearts.org for more details.

 

Boo Bash Flyer copy

We are so excited about the FUN planned for our second annual Boo Bash event!  A couple of answers to FAQ are below.  Please read!

1.  A few tickets are still available.  Please purchase asap through www.mikshiddenhearts.org

2.  Boo Bash has a A LOT of fun entertainment planned.  Make sure to check in promptly at 6:00 so you do not miss on a minute of fun!

3.  Special entertainment planned includes:  musical guests:  Rhonda William and Smokestack Sons.  Casino night with some amazing prizes.  Silent and Live Auction and more!

Thank you for coming and helping us to serve homebound and hospitalized chronically ill teens all over the country!

And a big thank you to all of our sponsors!  Including:

Gold Sponsors:  JKnesek & Associates, Spero Rehab and Ronda McWhorter.

JKnesek & Associates, Spero Rehab and Ronda McWhorter

JKnesek & Associates, Spero Rehab and Ronda McWhorter

Silver Sponsors:  Lamb Foundation for Dysautonomia Research, Towers Watson, Heston Law Firm, Texas Land Professionals, The Cox Family, The Kotecki Family, Commissioner Andy Meyers and Creating Memories Cakes.

Bronze Sponsors:  Dr. Ian Butler, The Marlowe Family, Mason Rd Sheet Metal, The Webb Family, Schaumburg & Polk, Inc., The Toman Family and The McWhorter Family.