Posts Tagged ‘teen’

wp-1456271913240.jpgAnti-PROM Update – Loving the excitement for all of you coming to Anti-PROM. We have handed out most of our tickets. DON’T MISS OUT!! We only have 3 more tables available. If you OR YOUR GUEST (if you are bringing one) have not registered yet, please do so asap. Don’t wait for closer to the date to try to register as they will be gone by then.
 
**Many of you said you plan on bringing a guest, but your guest has not registered yet. Please do so asap so you do not miss your chance to bring your friend.
Register online at:  www.MiksHiddenHearts.org
(Read Press Release Below)
#Dysautonomia  #ChronicIllness
Mik’s Hidden Hearts Alliance
MHHA Prom Flyer 2016

Press Release:

Anti-PROM for Houston area Chronically Ill Youth – Registration Now Open! 

When:  Sunday, April 24, 2016

Where:  Maggiano’s Little Italy (in the Ballroom) 2019 Post Oak Blvd.  Houston, Tx  77056

 

Mik’s Hidden Hearts Alliance (MHHA), a 501c3 nonprofit charity, founded by 19 year old Katy resident Mikaela Aschoff, will be holding their 4th Annual Anti-PROM for Chronically Ill high school aged teens on Sunday, April 24, 2016 from 6:00pm to 9:00pm.   The event, will be held at the Maggiano’s Little Italy in their Ballroom in Houston, Texas.

 

Who is eligible to attend?  Any teen or young adult who has Dysautonomia and other life-changing chronic illnesses.  Each hidden (chronically-ill) guest is allowed to bring one friend (teen or young adult) as their guest.

 

Special night to include:   Dinner, casino games, music by Johnny Bravo Entertainment and fantastic prizes for each of our hidden (chronically-ill) guests. Attire:  Dress is semi-formal.

 

Complimentary Tickets require online RSVP by April 15.   Tickets are first come, first serve.  Sorry, NO tickets at the door will be available. To reserve your tickets, visit www.mikshiddenhearts.org.

 

Donations are greatly appreciated!  If you would like to contribute financially to the Anti-Prom, donate 100 of your business product for our Welcome Swag Bags or donate game prize baskets for our guests, please contact Mikaela Aschoff at info@Mikshiddenhearts.org.

 

Why is it called Anti-PROM?  MHHA Anti-PROM is the opposite of a “traditional school prom” because it is specially planned and tailored for the health and physical abilities of our guests who are all Prom Kings and Queens in our book!  Our Anti-PROM is uniquely planned which includes no strobe lights and no dancing due to their physical/health limitations, but does include fun deejay music, dinner and sit down casino games in which everyone is included and has lifetime of memory making FUN!

 

 

What is a “Hidden Illness”?  Like Dysautonomia in which MHHA Founder Mik Aschoff has, a hidden illness is one in which the patient looks “normal” on the outside, but their serious illness and debilitating unpredictable symptoms are hidden to the casual observer.  Not all life-changing debilitating illnesses are visible and it is our hope at MHHA to give a voice to those we serve who feel mostly hidden in society, their unseen pain often disregarded and unfortunately sometimes forgotten by their friends due to their frequent hospitalizations and school absences.

 

Thank You!  This event would not be possible without our many generous volunteers and donors who give throughout the year, especially at our annual Boo Bash, which helps make Anti-PROM free to our guests.  They have our most heartfelt appreciation!

 

MHHA is proud partners with Lamb Foundation for Dysautonomia Research and appreciate the dedication of Dr. Numan, Dr. Butler, Rebecca Martinez (Dysautonomia Research Nurse) and the rest of the amazing team at the Dysautonomia Center for Excellence at UT Physicians / Children’s Memorial Hermann Hospital in Houston, Tx.

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Mik Homecoming 2010 – Freshman year in High School – Hours before our life changed forever

From the Momma Bear: October is a fun month of fall festivities and homecoming football games. I was just like many of my sweet momma friends 4 years ago coordinating my daughter’s Homecoming pictures, Homecoming mum (it’s a Texas thing!), her homecoming dress, etc. My daughter always had big goals and dreams and she started out her freshman year ready to take charge and make them happen – determined to go have fun in high school while focusing on making good grades so she could go away to college after graduation.

This October 23rd marks the 4th year anniversary when my daughter first collapsed on the dance floor at homecoming dance. Oct 23… the day my daughter’s entire “planned” future was taken away from her (or so we thought then). Her entire high school experience – gone in one night. When something we all take for granted, a working autonomic nervous system, decided to work against her pitting her body against the will of her spirit.56813_1697051351358_2025625_o

We decided to host our first Mik’s Hidden Hearts Alliance Boo Bash in 2012 to turn a very negative date in our world to a positive date (Boo Bash!) in order to raise money to spotlight the needs of the hidden teens, young adults and their families that we serve. October 23rd is also Texas Dysautonomia Awareness Day in honor of Mikaela Aschoff.

Please make plans to attend Boo Bash and help us continue our mission! It is a blast! If you can’t attend, please consider making a donation, sponsoring or purchasing raffle tickets. Go to our website for more information: www.mikshiddenhearts.org

Thank you for helping to make my daughter’s dream and vision of creating Mik’s Hidden Hearts Alliance for Dysautonomia Teens come true and giving the families we serve a voice and help them to remember they are not alone. Oct 23rd is now a positive day in our eyes. It is the date we had our eyes open to a world we did not realize unfortunately existed before we were exposed to it…. that of thousands of young people across the country who are suffering from debilitating chronic illness and their families who are in need and live this life on a regular basis. They are the unsung heroes – some of the strongest people you will ever meet – who live a mostly invisible life and deserve their time in the spotlight.

ImageJoin us to see Angelina Jolie’s latest movie, Disney’s Maleficent on Friday May 30, 2014 at Santikos Palladium in Richmond, Tx.

All MHHA teens & young adults, their families and our volunteers are welcome to attend!

RSVP so we can expect you!  We are going to (try) to get our group together to purchase the discounted tickets.  But we need to hear from you first!  Click here to RSVP.

Santikos Palladium:  7301 Grand Parkway Richmond, TX 77407 (Just south of Westpark Tollway)  (map)

Time will be determined as the day gets closer (when they release time availability).  We are planning a time approximately 3:00pm.

http://www.santikos.com/movie_details?movie_id=134965&date=2014-05-29

The untold story of Disney’s most iconic villain from the 1959 classic “Sleeping Beauty.” A beautiful, pure-hearted young woman with stunning black wings, Maleficent has an idyllic life growing up in a peaceable forest kingdom, until one day when an invading army of humans threatens the harmony of the land. Maleficent rises to be the land’s fiercest protector, but she ultimately suffers a ruthless betrayal – an act that begins to turn her pure heart to stone. Bent on revenge, Maleficent faces an epic battle with the king of the humans and, as a result, places a curse upon his newborn infant Aurora. As the child grows, Maleficent realizes that Aurora holds the key to peace in the kingdom – and to Maleficent’s true happiness as well.


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement and hope to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses through social outreach, Hope Kits, Hospital Teen Program and Dysautonomia Awareness.  #dysautonomia #chronicillness #Hope4DysTeens #TheHidden Dysautonomia Teens

Please help spread awareness!  Like our Facebook and Twitter pages.

 Learn how you can help MHHA here.

We appreciate all of our angelic sponsors.  With every big or small donation, we are able to help more Hidden Teens.  Special thank you to our Gold Heart Sponsors at Lamb Foundation for Dysautonomia ResearchSpero Rehab and J Knesek & Assoc.

One of our most popular posts:  Originally written by Mik on Friday June 30, 2012 – Reblogging for our new friends.

This week has definitely been the definition of crazy. For a few days, at least, everything was going pretty decent in my life  despite having had some “hiccups” here and there. I enjoyed the blessing of having a period of time where things were calm and my health seemed to be at a stable state. (Stable in being that I can get through the week without any major episodes or symptoms.) Though it was calm, it was unsettling….like the silence before a storm. It felt that way because anything “normal” in my life is abnormal to me and I am so used to everything around me being chaotic and out of control. Nonetheless, I did not take this moment of time for granted and enjoyed it as much as possible.

So I was not surprised when that all came to a quick end this week.

This previous Wednesday, I woke up and went about doing what I usually do, when a dull pain in the upper left part of my abdomen started to annoy me. I ignored it, writing it off like most of the daily aches and pain I deal with. But around five that evening, I was finishing up some online schoolwork when, out of nowhere, started to feel really dizzy and had an uncomfortable internal heat.

166633254932220462_hE9E3kFQ_fI got up from my desk so I could go lay down until these feelings went away, however, gravity had a different idea.  After standing,  a stronger wave of dizziness hit and my legs suddenly became weak and gave out underneath me. I mentally rolled my eyes as I said hello to the all-to-well acquainted floor, and after doing a mental check to make sure I did not injure myself, I called for my mom to come and help me . She and my brother came to assist me, while my  legs were an equivalent to a jelly fish.  So the task of getting me from the front room to the bed took a little longer than expected.

After getting settled in bed, I had to rest until my blood pressure rose back to normal and wait until my legs decided to work again.  (After each collapsing episode it takes awhile for me to get up and move around because my legs can lose their function.)  However,  that dull pain in  my left side that I had been ignoring started to increase until it became extremely uncomfortable.  About an hour later, the pain was to the point of  where it became unbearable and I was nearly in tears. With the pain becoming worse in a short amount of time, and it starting to spread up into my chest, my mom rushed me over to the Memorial Hermann hospital ER.

The emergency room was incredibly busy so it took awhile until one of those ER rooms were available.   By then, I could barely sit up anymore due to all my symptoms, especially the pain, being off the chart. So when we got settled in the room and the doctor ordered some medication to bring me some relief from my pain,  I could have sworn the angels of Heaven themselves sang Hallelujah.

All of the blood work and testing went by in a blur, and afterwards we were waiting  for the results to come back. During that time, I started thinking over about my easygoing days and how much I enjoyed them while they lasted. If you rewind just a few months back, my usual symptoms and even some new ones started to spiral out of control.  It was frustrating because even though I have been on a series of medications that had been working for so long, that didn’t stop the cycles of intense symptoms.

Over the course of previous episodes, I went  through rounds and rounds of tests and I was always disappointed and sad when the results came back normal….and to some that may sound weird. Why am I disappointed because of that? Wouldn’t anyone be happy to have this so called good feedback? In my case, it is frustrating to get back “normal” results because that means that my team of doctors goes back to the drawing board on what is triggering these extreme episodes.

6262012I know if I received an official co-existing diagnosis that resides along with my Dysautonomia, it would not make me all healthy again and solve everything. It would at least, though, be able to help my doctors to figure out another form of treatment  to help calm my out-of-control symptoms.  So when the ER doctor finally came in with the news that all the results were “normal”, I crumpled into tears as soon as he left. I want to know what is causing all of my pain, but what I want to know even more is to find out why I am abnormal and extreme in even the Dysautonomia world.

Before I go on, I want to say to those that read this that are suffering from Dysautonomia like I do, or from any other chronic illness; do not be discouraged from what I have written here.  Whenever I receive disappointing results or whenever I cry, it is never out of losing hope.  This just means that there is another obstacle to overcome, and over every obstacle is the other side, which hope lies.

Due to my  stubborn nature, I NEVER give up. I’ll never give up trying to fight through an obstacle. The hospital is my battlefield, Dysautonomia is my enemy. My tears are just a sign of my battle.  I don’t know what different things you are going through, all of our stories are different, but at the same time they are similar:  we are the “hidden” with invisible illnesses that can wreak havoc in our lives.  We are in this battle together.

I hope I can inspire you to never give up, to never stop fighting.  Always keep moving forward through your obstacles because eventually you will win and get to the other side. So I kept this mantra in mind when they sent me home and it brought me comfort.   However, I will not lie.  I was down for the rest of the week and had pity parties here and there, but I shook it off afterwards and kept on pushing forward.

The good news is that after days of resting, I have been slowly recovering and was even feeling strong enough to go see the outside world this past weekend. Right now, there is nothing else anyone can do at the moment until my main cardiologist returns from out of town. But until his return…..I will just have to take it easy and treat all my symptoms as needed and sing the good ole Hakuna Matata lyrics.

 Now for the Dys Song of the Day:  I always flip to this song on my ipod (which is practically attached to my ears 24\7) when I’m having a low day or in need of some empowerment . It gives me a reminder that God is still there and that He is watching over me.

Skillet- Whispers in the dark

No

You’ll never be alone

When darkness comes I’ll light the night with stars

Hear my whispers in the dark

No

You’ll never be alone

When darkness comes you know I’m never far

Hear my whispers in the dark

Whispers in the dark

 


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses through social outreach, Hope Kits, Hospital Teen Program and Dysautonomia Awareness.  #dysautonomia #chronicillness #Hope4DysTeens #TheHidden

Please help spread awareness!  Like our Facebook and Twitter pages.

 Learn how you can help MHHA here.

We appreciate all of our angelic sponsors.  With every big or small donation, we are able to help more Hidden Teens.  Special thank you to our Gold Heart Sponsors at Lamb Foundation for Dysautonomia ResearchSpero Rehab and J Knesek & Assoc.

 

ImageI wanted to give my teen friends a sneak peek of just one of the items that will be included in your anti-PROM swag bag.  

Check out the picture to the left for the latest Mik’s Hidden Hearts Alliance Shirt design.  

 

And I am very excited by all the Anti-PROM prize donations that are coming in.  

Can not wait to share this fun day with all of you.

 

Anti-PROM RSVPs due today!  Register online here.

**Hidden teens:  if you are bringing a guest, they need to be registered too through the above registration link.

Last, but not least, I would like to express my appreciation again to my co-chair, Lori Allen, for really going beyond the call of duty to help make this year’s Anti-PROM at Maggianos a success.  


Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.  #dysautonomia #chronicillness 

Please help spread awareness!  Like our Facebook and Twitter pages.  

 

 

Because we are meeting more and more new teens joining our Mik’s Hidden Hearts Alliance family, we are reblogging one of our most popularly requested articles about Mik’s Story from Katy Magazine.

 

Please share and together let’s bring awareness!

 

Mikaela Aschoff collapsed at her first Homecoming dance,
but doctors had no idea what was wrong with her. After a
series of tests, she was diagnosed with a devastating disease.
now this Katy teen finds purpose and meaning giving gift
boxes of love to other teens with chronic illnesses.
Here is her story…

Click here to read more…

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

Image

 

Movie Hidden Teen Social – Tomorrow!  Laughter is the best medicine!  Join us tomorrow to see the latest Muppets Most Wanted (one of Mik’s favs) at the gorgeous Palladium movie theater in Richmond, Tx.  

Don’t Forget!  Message us so we can know to expect you and save you a spot (Message through our website www.mikshiddenhearts.org)

 

See movie details and ticket cost here:  http://www.mikshiddenhearts.com/apps/calendar/

 

Also, don’t forget!  Anti-PROM rsvps due by April 1st.  Hope to see you there!

 

Mik’s Hidden Hearts Alliance is a 501c3 charity dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.