Posts Tagged ‘teens’

Image

Photography courtesy of Brett Perroux

RSVP due tomorrow for Anti-PROM for chronically-ill teens!  Sorry, no tickets available at the door.

Chronically-ill teens Anti-PROM is almost here!  We need your rsvp (and your guest if applicable) by tomorrow!  We want to accommodate as many teens as possible so share the news and get your rsvp in today.  Click here to register.  Sorry, but registering at the door is not available. 

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

Image

Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. 

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.  #dysautonomia #chronicillness #prom #POTS

The dress shopping day for last year's Anti-Prom

The dress shopping day for last year’s Anti-Prom

Need a Prom Dress for this year’s Anti-Prom?  We have dozens upon dozens of gorgeous gowns donated by Pruning Hooks Ministries.  The big “shopping” day will be THIS Sunday from 2:00 – 4:00 in Old Town Katy, Tx.  RSVP here to receive location information.  

Looking forward to seeing you there!

And don’t forget!  RSVPs for the Anti-PROM are due April 1st.  See below for more details…

 

 

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

 

 

 

 

 

 


 

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

Image

Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

Image

Photography courtesy of Brett Perroux

Giving deserving chronically-ill teens something to smile about and look forward to:  Anti-PROM!!!

FAQ #8 – If I am not sure if I (chronically ill teen) will bring a guest, do I have to rsvp us both at the same time?

Answer:  No – Each guest needs to rsvp separately – regardless if they are a “hidden” teen or guest.  However, upon registering guests must include the name of the hidden teen they will be attending with.  Get your rsvp in as soon as possible so you do not miss out.  Then, if you decide to bring a guest, you can have them (or you) rsvp online at that time.  **All rsvps need to be received by April 1st.  Click here to register.

Image

Photography courtesy of Brett Perroux

So help us to reach as many deserving teens as possible – spread the news! Get the word out to deserving chronically-ill teens! Just because you maybe homebound or frequently hospitalized – missing alot of school – does not mean you should miss a traditional teen high school experience like Prom!

Who is Mik’s Hidden Hearts Alliance Anti-Prom for?

Any high school age teen who lives with a life-changing debilitating chronic illness like Dysautonomia and other hidden illnesses. (Not just for Juniors and Seniors!) Also, we love our college age mentors who was a hidden teen to attend as well. Contact us for details.

Image

Photography Courtesy of Brett Perroux

Why is it called “Anti-PROM”? Because we think humor is the best medicine and kindly tease that our chronically-ill teens like to do everything backwards (in Mik’s case, dysautonomia likes to put Mik’s autonomic nervous system on hiatus), it is called Anti-PROM because it is the opposite of the “typical prom”. No high school drama. Great music, but no dancing (due to physical limitations of some of our hidden teens). Casino night with tons of prizes. We are a group of includers – not excluders. Do not know anyone at MHHA? We have so much fun at Anti-PROM, I promise you will leave with friends!

Where is this being held at? At Maggiano’s in Houston, Texas. Coming from out of town? Message us and we will help direct you to some area hotels.

—————————

HOW CAN I HELP?

Image

Photography courtesy of Brett Perroux

We need prizes for each of our guest attendees! Yes, we want EACH hidden teen to go home with fun prizes!! Items can include: themed gift baskets, gift certificates, individual gift items, etc. We also need a GRAND PRIZE. We are also working on Swag Bags for each guest. Have something to give? Or you have a business you would like to promote and can give from 1 – 125 items? Please message us at info@mikshiddenhearts.org.

We also need financial donations. Thanks to our Boo Bash sponsors from October, we have all our basic costs for the Anti-PROM covered. However, we want to go much bigger for these deserving teens than just “basic”. Your financial donation will help this dream come become a reality.

Image

Photography Courtesy of Brett Perroux

Volunteer: We will be hosting a casino game night for our Anti-Prom hidden teens. Know how to deal? Or can you help with setup / clean? Want to collect donation prizes for us? Whatever you can do, we would appreciate it!  Please make sure to contact us here with your availability and preferred area to serve.

Get your RSVP in today – Tickets are first come, first serve. Sorry, but registering at the door is not available. A wait list is expected due to the demand.

Feel free to share the flyer below!

Image

Mik’s Hidden Hearts Alliance is dedicated to bringing positive encouragement to homebound and hospitalized teens who suffer from Dysautonomia and other life-changing chronic illnesses.

20131215-165225.jpg

In Mik’s Words: Too often we teens with Dysautonomia and other chronic illnesses fall into the trap of frequent doctor’s visits, hospitalizations, therapies, etc etc. In between all of those, well.. mostly, we just feel quite simply – sick! I know we at Mik’s Hidden Hearts Alliance can’t change how people physically feel (wish I could), but I know we all together can make each other feel better emotionally. Socials are a great opportunity to get out of your day-to-day medical routine and just have FUN!

Which leads me to do the wrap up of our December social – Christmas and Keeno Potluck Party. We all had an absolute blast! It was a fun evening of playing Keeno (think Bingo but with playing cards) where everyone went home with a prize and savoring all the tasty treats, appetizers and soups everyone brought for the potluck.

20131215-165255.jpg

Seeing a bunch of smiling faces was so awesome and we were exceptionally happy that several of the hidden teens and their families in the area were feeling up to coming out. This was a perfect way to start the holiday season right!20131215-165313.jpg

Make sure to join us for our next monthly social in Houston – fun for all of our chronically-ill hidden teens!:

Join us Thursday, January 16th, 1 – 3:30pm, at Glazed Over Ceramics Studio for a creative, fun activity making fused glass! You’ll create a beautiful piece of glass by laying out your design of glass chips on a glass plate. It is later fused and shaped. The studio also offers ceramics that can be painted, but the glass is really fun and unique. No special glass skills needed!

Glazed Over is waiving the table fee for our MHHA group. Everyone will select and pay for their own projects. (MHHA will offset the cost of each teens’ purchase by $10. ) Items range from $18 – $60, with the average being about $25. Your item will be fused and be ready for pick up about 10 days later.

If you are able to, please bring a plate of appetizers or snacks for everyone enjoy. Glazed over sells some refrigerated drinks or bring your own.

Please RSVP to keri@mikshiddenhearts.org as soon as possible, so we can make sure enough tables are set up. This is really fun for everyone!

http://www.glazedoverceramics.com/

Glazed Over Ceramics Studio, 14627 Memorial Drive, Houston, TX 77079

More pics below from our fun Christmas & Keeno Potluck Party!

20131215-165335.jpg

20131215-165351.jpg

20131215-165401.jpg

Boo Bash Flyer copy

We are so excited about the FUN planned for our second annual Boo Bash event!  A couple of answers to FAQ are below.  Please read!

1.  A few tickets are still available.  Please purchase asap through www.mikshiddenhearts.org

2.  Boo Bash has a A LOT of fun entertainment planned.  Make sure to check in promptly at 6:00 so you do not miss on a minute of fun!

3.  Special entertainment planned includes:  musical guests:  Rhonda William and Smokestack Sons.  Casino night with some amazing prizes.  Silent and Live Auction and more!

Thank you for coming and helping us to serve homebound and hospitalized chronically ill teens all over the country!

And a big thank you to all of our sponsors!  Including:

Gold Sponsors:  JKnesek & Associates, Spero Rehab and Ronda McWhorter.

JKnesek & Associates, Spero Rehab and Ronda McWhorter

JKnesek & Associates, Spero Rehab and Ronda McWhorter

Silver Sponsors:  Lamb Foundation for Dysautonomia Research, Towers Watson, Heston Law Firm, Texas Land Professionals, The Cox Family, The Kotecki Family, Commissioner Andy Meyers and Creating Memories Cakes.

Bronze Sponsors:  Dr. Ian Butler, The Marlowe Family, Mason Rd Sheet Metal, The Webb Family, Schaumburg & Polk, Inc., The Toman Family and The McWhorter Family.

 

Image

#BlessUpDysautonomia – In honor of Dysautonomia Awareness month, we challenge everyone: hidden teens, their families, our entire communities to do small and big random acts of kindness towards people in our community who are homebound due to illness.

Think about that neighbor you have not seen in awhile or that person who was on your prayer list at church you have not seen. Seek them out, Bless Up and do little “angel drive byes”. These acts towards homebound people of all ages is appreciated more than you could ever know. Be the hope and light for others…

http://www.MiksHiddenHearts.org

Image

 

www.MiksHiddenHearts.org

Immediate Press Release:  MIK’S HIDDEN HEARTS ALLIANCE TO HOST SECOND ANNUAL CHARITY FUNDRAISER BOO BASH FEATURING CASINO NIGHT

www.MiksHiddenHearts.org     713-955-8MIK

The hottest ticket in town this October is the Second Annual Charity Boo Bash Casino Night, October 19th, benefitting Mik’s Hidden Hearts Alliance! Get ready for a scary good time at this Halloween soiree!

This party has everything for the adults in our community: casino night, live music from singer Rhonda Williams and dynamic band duo the Smokestack Sons, drinks, even a costume contest! There will be live and silent auctions with some exciting items up for bid.  A catered delectable dinner will be served.  While those with a wicked sweet tooth will enjoy the amazing Halloween dessert buffet offered by Creating Memories Cakes. 

The witching hours are 6-10pm at Multiplicity in the heart of old Katy. Tickets are $40 if you order by October 12, $50 at the door. For more information or to reserve tickets visit www.MiksHiddenHearts.org.  Want to be a sponsor or donate an auction item?  We appreciate it!  Please contact us for details on how you can help!  Can’t attend?  Consider making an in-spirit donation.

Mik’s Hidden Hearts Alliance was founded in 2011 by Katy teen resident, Mikaela “Mik” Aschoff after falling unexpectedly ill with Dysautonomia her freshman year of high school.  After being homebound with this debilitating illness, Mik started MHHA to offer hope and help to local and national homebound and hospitalized teens with dysautonomia and other chronic life-changing hidden illnesses by sending them Hope Kits (teen focused gift items), outreach meetings, bring about Dyautonomia Awareness and plan socials like our “Anti Prom” held this past May for Houston area chronically ill teens.

Dysautonomia is a complex condition caused by a dysfunction of the autonomic nervous system. It affects the cardiovascular, endocrine, metabolic and gastrointestinal systems and can cause very debilitating symptoms. For more information visit their website at www.MiksHiddenHearts.org

Event Venue:  Multiplicity is located at 1306 Avenue A ~ Katy, TX 77493
For questions about the Boo Bash, e-mail keri@mikshiddenhearts.org   

Our appreciation goes to our sponsors for the Mik’s Hidden Hearts Alliance Boo Bash (as of 9/15/13) are

(Gold Heart Sponsors) Spero Rehab & Knesek & Associates Traffic Engineering and Consulting.

Image  Image

(Silver Heart Sponsors)  Lamb Foundation for Dysautonomia Research, The Cox Family and The Kotecki Family. 

(Bronze Heart Sponsors)  Mason Road Sheet Metal and numerous anonymous angel donors 

(In Kind Sponsors)  Multiplicity, Creating Memories Cakes and Accrotech, 

Special thanks to the McWhorter and Trevino Families for their continued dedication and support for MHHA. 

Also, much appreciation to Dr. Numan, Dr. Butler, Rebecca Martinez, RN and the rest of the medical team at UTHSC Physicians/Dysautonomia Center for Excellence working with Children’s Memorial Hermann Hospital in Houston, Texas for their ongoing determination and dedication to help those who suffer from Dysautonomia. 

Image

 

 

How’s your summer going? Hope y’all have been setting some fun goals and able to get out of the house to have fun (despite the heat!)

I have not done a “dys song” in awhile, but wanted to share this one with you. Listen to the lyrics and remember we are NOT knocked down forever!

TobyMac – Get Back Up

Posted by Mik’s Hidden Hearts Alliance.

For more Mik’s Hidden Hearts Alliance updates, check our website at:www.mikshiddenhearts.org or our Facebook page here.

We help teens and their families who have Dysautonomia and other life changing hidden illnesses.

Dysautonomia Awareness – Support Group – Socials – Hope Kits