Posting from Mik’s Mom: Click this link here for a very informative read from DysGirl.com. I completely agree with her that this should be standard on all physical exams! If you are a teen or have a teen who you suspects has Dysautonomia, ask your doctor to do this simple Poor Man’s Tilt Table Test.
Are the results of the Poor Man’s Tilt Table Test leaning towards confirming the diagnosis of Dysautonomia? Request a referral to see a Dysautonomia specialist in your area and request a tilt table test. For a list of specialist in your area, click here.
And remember, please talk to your doctor about any medical questions. I am mom of a patient – not a medical doctor. This information is here only for information.
And always remember – keep are searching for your answers, your diagnosis and treatment. Many go through months, if not years, before an accurate diagnosis is made. Don’t Give Up!
Know of a Teen with Dysautonomia or other hidden chronic life-changing illness? Nominate them for a Hope Kit filled with teen focused gifts. Go to our website for more details: www.MiksHiddenHearts.org
Mik’s Hidden Hearts Alliance mission is to offer hope through empowerment and community awareness to both hospitalized and homebound teens and their families who suffer from Dysautonomia and other life-changing hidden chronic illnesses.